Nicola C (Nikkikicks), Undiagnosed Bio Louise, Updated Adrenal Bio
January 11, 2019
MaryO Pituitary, Pituitary Surgery medications, pituitary, pituitary surgery 5 Comments
The pituitary gland
I was diagnosed 2012 and had pituitary surgery done 2013. I am currently on medications.
I’m curious to talk with other Cushings patients. I don’t know anyone with the disease and have actually never even had a conversation with someone with cushings. It would be nice to relate with someone.
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Nicola C (Nikkikicks), Undiagnosed Bio Louise, Updated Adrenal Bio
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Jan 12, 2019 @ 11:36:54
I, too, was diagnosed with a pituitary tumor and subsequently had surgery to remove it. I still struggle day to day with many issues…word finding, comprehension, emotions. I also struggle with finding Cushings disease support groups in our area.
Jan 12, 2019 @ 21:25:24
I was also diagnosed in 2012 and has surgery in 2013. I continue on meds and have many health issues still. I haven’t had a full recovery and dramatic weight loss or anything. I’m now starting to regret surgery as it has left me very limited in what I can do. I was far more mobile before. I miss my life. I’ve lost everything since having surgery! I just lost the last thing I had… my marriage. My spouse is tired of being a caretaker. Now I am completely alone… and still not recovered.
Mar 18, 2019 @ 19:00:20
Like to here from you on Cushing Disease I have a tumor and thinking about surgery but I don’t know what to expect after surgery would you do it all over
Jan 16, 2019 @ 11:24:06
I’m a Cushing’s survivor from Michigan. Would love to chat anytime. Diagnosed in & had surgery in 2010, have been in remission since. Life has been somewhat of a struggle, but great improvements everyday.
Jan 15, 2020 @ 22:58:42
Hi Stefanie I would be happy to talk or email which ever is more convenient. I have pituitary cushings. 2 surgeries later last one oct 2019 I seem to be doing good so far.
Kindly
Stacey
7165660376