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Kelsey G (kelcann44), Undiagnosed Bio

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Hi there! I am a 24 year old female from New Zealand. I am curently awaiting my last test to prove 100% if I have cyclical cushing syndrome or not.

I went from crazy happy boucing sport ,dance and hunting crazy tom boy to at age 12 have 8months solid of tonsitis once i got them out i never recoverd propley and turns out i had galandular fever which effected me really badly they belive it is where my chronic fatuige comes from and other things.

From 2008 to may 2011 i was living your normal teenage dream making up for being so sick in highschool i could makeup for that and build some.special groups of friends amd plan partys and holidays….untill may 2011, I was standing behind the counter at work and there was a niggle at my side going down my legs and that soon turned into full blown cramping that had me colapse amd feeling like i was being kicked woth boots. They rushed me to hospital and with pain medication it became a very sharp.niggly pain and with pain came vommiting ( i am not also diagnosed woth cyclical vommoiting syndrome
After a week they xrayed my side and said i was very constipated but they tried and tried to clear it amd they couldmt…..this episode lasted 8 weeks and i tend to have them every 6months of so ranging from 8weeks to 16weeks eventually i have been picked up by an endicrine professor who has done some tests with abnormal results the last one being they 30day salivitoryswab test

I next have the urinary test but i canot have that untill im out of pain and having bowel motions ( this had been week 5) just wondering if anyone else has had bowel troubles with theirs. The endicrine man is shocked that i have been missed for soo long when i have 99% of side effects ( i mever knew i just thought i was gettimg fatter and my chubby cheeks had decided to fatten my whole face and my old size 16 pants and 16 top. Has now turned into 16pants and size 24 top!

I wish i had a answer because the life i am living is killing me i am a hollow shell of the person i was i have no life dreams or ambitions its one day at a time or getting sick again will ruin it (and i beyond love traveling ended up in ireland hospitala and laid up 2weeks bedrest for sinus infection and pnemona and a close to bursting drum…i camt plan holidays now as i cant save the money my bugets blow away when im out of work for 16weeks !

Luckily my mum.andndad are there for me but i see how me being so ill is breaking their hearts and puting them under so much stress along with my brothers.and my neices and nephews . My big boy 4 year old nephew breaks down everytime he sees me in hospital and the needles in the hand must.hurt me and that the hospitals turned aunty telsey into a quiet ghost who dosnt love me and play with me….smashes my heart into a million peices hearing that but it is true and when im good im.rediculous i party like a rockstar and bugger the health because im done with living the shadow ghost of.me!! đź’–

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Wendy, Undiagnosed Bio

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A Golden Oldie

Hi My name is WENDY from New Zealand …I am 57 yrs young…I am a nurse…..it was once suggested by mail to my GP that I may have episodae cushings…and that it would be intersesting to take 24 urine specs for cortisol levels over a period of time….this was never done..I only became aware of these when I asked for a copy of all my notes as I was moving to Australia…..

My symptoms I believed robbed me of my former self…..

I stopped menstruating at 45yrs old….my weight would fluctuate wildly..sometimes by 10 to 15 pound… at one point wighing in at 100 kgs……and for no apparent reason losing weight as much as 4 -5 kgs……my happy out going approach to life would become sad.lifeless with a blunted facial affect…..heat intolerance…low energy…poor sleep…high blood pressure.

I have had the unusual presentation of  supraclavicle pads…..of no suspicious origin…

I have always managed to work but sadly these changes took their toll on my personal life….I remain optimistic.with the support of loving family and friends…..cushie helper I truly feel that my condition occurs in cycles…….

I await your thoughts….sincerely Wendy

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