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Deanne (DeeR), Suspected Cushing’s

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undiagnosed3

 

Please help suspected cushings. I have chance to go see.Dr f. And Dont want to waste the opportunity.

I am 45 and a chronic pain patient from a drunk neuro surgeon removing my first ribs and scalene muscles when I was mid twentys. He injected me with about 20 cortisone shots in a year trying to cover his mistakes. Seveve hot flashes and mood swings began. Then can ovarian cysts that would burst. Finally contolled by 1/50 birth contol pills.

2003 Prior to loss of insurance and a divorce primary dr did pituitary scan after my complaints of increased pain every few months with my cycle, the hot flashes and my bearded lady feature.

2005 or 2006 menstal cycles so bad can’t leave house because of amount of bleeding and muscle aches, extreme fatigue and weight gain. At this point too old for birth control pill and naughty me yep I smoke.

2007 they day hot flashes, weight gain because i.u.d.is at the end of its life cycle have it removed.

2008 pregnant hot flashes and breast feeding. Beautiful seven year old and I am sleeping through her childhood. Soooo sad. Memory is now awful and cognitive getting worse. Thought I had alzemers new primary says cushings and sad it was a relief not crazy and maybe can get better.

Not alot of tests vit d so low at 17, morning cortisol high , 24 hour fine. Acth ref range low was 6 mine 7.

I’m thinking adrenals. Need help making sure i am as ready as can be to see dr f. Do not want to waste my chance to get better.

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Marianne, Cyclic Cushing’s Bio

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I was diagnosed with Cushings in 2005 after 10 years of living the nightmare.

My first symptom was a 30 pound weight gain in 1995 over only 3 weeks.  My MD told me to go on a diet. At the time I had whooping cough and was bed-ridden and not eating anything. I thought it was my thyroid, which I had problems with since giving birth in 1983.

I was diagnosed by my endo, who soon after became my primary physician as well. It was very hard to diagnose the Cushings as it is cyclic, but finally in 2005 a dexa test finally showed up. We had tried everything at that point.

I did have pituitary scans; the first time showed a microadenoma of about 5mm in the left lobe. When he repeated the test that was gone and there was a 2mm one on the right side. That too disappeared, but at the time I was going to healing masses often.

We cannot find the cortisol producing tumor, so we just try to keep me calm and address the symptoms to make me as comfortable as possible. The ONLY symptom I do not have is the striae, but I have every other one including the lovely moon face, hump back and GASP whiskers.

Thank the Lord God above for tweezers and hair removal products!

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