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Karen K, Undiagnosed Bio

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undiagnosed2

 

Hi, I’m Karen 51 yrs old, undiagnosed by a doctor, just realized all my crazy symptoms are related and have made an appointment with my doctor for next week.

I think it started in my Mid 30s with very bad acne, horrible migraines with throwing up, vertigo, high blood sugars, major depression, sleep apnea.

My symptoms over the last 12 years are hair loss on my scalp, weight gain no matter what I eat or how much I exercise all in my torso, buffalo hump and fat pads above clavicles, daytime exhaustion, insomnia, bloated feeling, edema in my legs and feet, tendonitis, arthritis and bone spurs, dehydration daily, sweating a lot during the day and at night, bruise easily, muscle weakness, depression, scary crazy mood swings with lots of screaming, no libido, red and white patchy tongue, high blood pressure and diabetes, my face gets red and hot like I’m blushing or have a bad sunburn, then goes back to normal looking, fat face, really bad heartburn everyday several times a day and before I go to bed I need to take antacids, it’s so bad I feel like I’m going to throw up. then theres the strange boil on my back that comes and goes, and the diverticulitis, and most recently a blocked salivary gland! also some back pain by my hump and side pain next to my left breast, I get so angry and I just want to cry all the time, it’s so frustrating, and I’m so so tired everyday.

I have seen doctors for most of these issues. I never thought they had anything to do with each other, I was sick a lot when I was a kid, I just thought I was someone that got sick a lot. Especially with the diabetes, I just assumed I was getting infections because of my weakened immune system and premature menopause.

I’m not sure when I got the hump but it’s in my wedding photo’s. Our 12 year anniversary is coming in January. My periods stopped right before I got married at 40, that’s also when I was diagnosed with diabetes, high blood pressure and high cholesterol, over the last 12 years my weight had gone up and down but mostly up 75 lbs. I eat better now than I ever have, plus there’s all the exercise everyday walking 3-5 miles a day on weekdays.

Recently I was switched to the U500 insulin, so my sugar readings have been great, finally after a few years of very high readings and feeling like crap, diarrhea and vomiting.

I’m so glad I found this website!

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Diana M (dbear12003), Adrenal Bio

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adrenal-location

 

I’m so tired I think about giving up on finding out why I’m so sick. I’m just so tired. But I won’t give up I believe these symptoms are at their beginning stages of cushings.. I want this taken care of before it becomes heart related… I have been seeing an oncologist/hemotolgist/internist..He said because I have the supraclavicular fat pads usually a sign of too much cortisol and a 1.5 cm adrenal adenoma that sometimes releases too much cortisol into the blood that he is scheduling me with an endocrinologist and a rhematologist… there are many test involved to diagnose cushings syndrome. .. I pretty much have them all except the heart problem thank goodness… and no red marks.

I guess my first step is to see if the adrenal tumor is releasing cortisol. .. then we will see what happens. ..I almost convinced myself that I was a hypochondriac, but I still kept getting sick. I have seen numerous doctors ..The main symptoms that bother me are the supraclavicular pads…the adrenal tumor, the b12 deficiency anemia, the fatty liver, weight gain mainly in my tummy, the unexplained flank pain, glucose reading of a 100 in my urine (when there should be none). My alkaline phosphatase reading of 126…and blah. .

Sometimes I am so sick I end up in the ER, but get no answers. This last visit was horrible; I waited in the lobby 5 hours and asked my husband to tell them the pain was getting really bad.

My last ER visit was at Saint Mary’s on 6/4/2015. (I had a severe migraine, right side abdominal pain, aching left arm and leg, and upper back squeezing pain). The test St. Mary’s did are online and after reading them I was thinking should I be checked for Cushing Syndrome?

I have a 1.5 cm left side adrenal adenoma.

Unexplained right abdominal pain.

Fatty liver

Fat above the collar bone that seems to increase and decrease in size.

(Pictures of this)

Severe Fatigue

The worst migraines headaches ever; headaches are so bad it feels like I’m being hit by a hammer on one side of my head.

At least twice a month I get very nauseated and vomit

Red cheeks (Dr. Black observed this and thought it may be Lupus; that test was normal)

I cry more than I ever have.

Weight gain (mainly in my abdomen), I walk a mile every other night (even though it hurts so badly, like my bones will break) I have been eating healthier, but the weight gain keeps going up.

I have insect bites that take forever to heal

I bruise easily and have muscle pain

Many times it feels like my legs are going to break in half when I walk

Upper back ache constantly

My left arm and leg have this severe ache deep into my bone

Weak muscles in my shoulders

Used to have Periods that were irregular. (had an uterine ablation)

I wake up many times during the night very very thirsty

I have a b12 deficiency

I have had tremors for at least 10 years and have been taking primidone for a very long time.

My Alkaline phosphatase has been high on my last 3 cbc’s

I have a spot on my liver that I never got rechecked

I have a 1.9 cm thyroid nodule

Scoliosis in my neck

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