My menstrual cycle ended when I was 38 years. After a hormone panel, my doctor told me I was in menopause.
At this time, the whites of my eyes started hemorrhaging and my skin became paper thin, bleeding and bruising. I was tested for Von Willebrands which came back negative.
A few years passed and my blood pressure sky rocketed, my hair started falling out, my teeth were breaking and I was gaining weight and unable to stop it. I grew a heavy beard, black hairs on my arms and thighs. My face became distored, my head was pushed towards my feet from a hump on my back. I was losing the use of my legs, and unable to hold a pen or pencil. I started to look 7 months pregnant with a larged mid-section. I couldn’t retain simple instructions, and had to stop driving.
I saw numerous doctors, and each worked with the symptoms as the came, but no one put everything together. My feet and fingers were numb, and I was losing the ability to think correctly. I had severe depression and anger issues.
I saw an article in Reader’s Digest about a mysterious illness and took it to my current doctor. She really didn’t think I had Cushing’s because it was so rare, but my 24 hour urine test came back postive. Next I was sent for the MRI which showed the tumor on my pituitary. I had surgery June 27,2007.
It took 18 grueling months to wean off the Prednisone. I had chronic nausea and diahrrea during this time. My Endocrinologist did not study up on Cushings and removed my Prednisone 1 week after my surgery. I crashed and was taken to the ER in serious condtion. He did it to me again a few weeks later, with the same results. After the second time, he left my Prednisone alone for the next 18 months.
October 27, 2011 I had Paraespohcial surgery where my stomach had been pushed into my lungs. It was a very diffcult surgery and recovery. I am now batteling Celiac, which after reading up on Addisons, I am wondering if I have Addisons? I had Addison’s crisis twice when my predisone was removed to quickly after my brain surgery.
Even though I am cured of Cushings, it seems the side effect continue to make their debutes. I am grateful for where I am today, even though I don’t know what is around the corner. I guess what’s around the corner will be dealt with when I get there, but for today, I am thankful.