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Kat S (kats), Madelung’s Disease

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madelung

 

I’ve just been diagnosed with Madelung’s Disease.

I am a 52 year old female, who doesn’t drink alcohol. Not typical of this illness.

At first I was so relieved that I didn’t have some type of cancer that spread into my lymph nodes. I am still thankful this isn’t really life threatening.

I know it may be a difficult journey.

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Andrew E, Madelungs Disease

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Just discovered I have Madelungs disease. trying to find any resources for dr’s that specialize in this in  southern California are near impossible to find.

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H. Lane (Sunshine), Undiagnosed Bio

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I have a giant buffalo hump on the back of the neck with vertical blue/purple lines below it.

I also have lipomas not symetrical across my upper back.  Then there are two symetrical lumps near each arm pit.

Two lab results come back saying I have a normal cortisol level.

I am diabetic, type 2, with high blood pressure, and only slightly elevated cholesterol levels.

I am wondering if I may have Cushings as well as Madelung’s disease.  I am very confused.

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