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Maria, Pituitary Bio

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Originally from December 29, 2007

 

Hi there, I am 26 but I was diagnosed at the age of 16 with a pituitary tumor, 17 when I had removed the first time and 19 the seconded time.

Here is the story. I was pregnant at 15 and gave birth at 16. My son was born in June (I was 135 lbs) by December I was 240lbs. I had all the classis symptoms. Weight gain, thin skin, upper back hump, moon face, lack of a menstrual cycle, high cholesterol and the strata (all over stretch marks).

I was diagnosed in March in July (1999) since I live near Pittsburgh I had surgery with one of the doctors who developed the use of the Endoscope for removal of pituitary tumors. I had been told that the tumor would not come back. It was fine to have more kids. There was one in a billion chance that it would be a tumor that grows like cancer, and then there was a one in a million chance that there would be any of the tumor left behind that could grow back. A

fter words I lost most of the weight and the moon face. I had no need for hormones, because they only remove part of my pituitary, I also graduated high school and was married.

I felt very good when I gave birth to my 2nd son 22 months later (April 01). I was 160lbs. Well, I tried to ignore the weight gain, the lack of menstrual cycle, but when my hump started to come back and when in infant’s finger nail scratched me and I bleed, I self diagnosed this time and went to the doctor for confirmation.

I was 280lbs when I went in for the second time in November (2001). Now I am 90% sure there is a tumor up there I do not know I do not want to have a M I R to see. My husband and I will not have any more kids.

I still have a fear that it will come back on its on or if I suffer a body troma that causes the pituitary to enlarge that it will cause the tumor to grow and I will have to go through this again. I am still struggling to lose this weight. I am now 230

 

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In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007

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in-memory

Kandy’s Story…

Hi, I am a 39 year old woman. I have a putitory tumor for the last fourteen years. the tumor has kiilled my putitory gland. I no longer produce any hormones. I have been on steroids for over fourteeen years and now my organs are getting damage from the steroids. The doctor say I will die if I take them I will die without them. Everytime they try to lower my steroids I catch a severe infection. I usually hospitalized every three or four months because my body won’t fight the infection so They put me in give me iv steroids and antibiotics.

I have gone down hill so bad in the last two years I can no longer work or even clean my house the doctor wants me to limit my walking to two hundred feet that is impossiable to do with children. this disease is so frustrating as no one understand what you or going though. My husband has done a lot of research on it and he a wonderful support system. I had a very hard time finding a doctor that can help me. I was hoping I could find someone to talk too that is going though the same thing.

I live in constant pain and now the depression is so bad. I try so hard to be upbeat for my family but it is a efffort to get out of bed. I am thinking about going to Nashville clinc or maybe the mayo clinc. If anyone knows about these clincs please email me K-K_Kline@hotmail.com I would very thankful for any suggestions.

Kandy passed away September 9, 2007

Kandy Klein long-time member of the message boards passed away September 9, 2007.

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