October 10, 2015
MaryO
Empty Sella, Golden Oldies, Hypothyroidism, Other Diagnosis, Pituitary
anxiety, empty sella, headaches, hypothyroid, migraine, weight
I am 51. I was diagnosed hypothroid 25 years ago.
I was diagnosed with empty sella this year – by a neurologist analyzing my migraine headaches. He has ordered a prolactin test which I will have done when I see an endocrinologist in a about a month.
My weight had been pretty stable for years, now I seem to be gaining steadily and my breast are getting huge … I know … but it’s not funny to me because I can’t wear most of my clothes any more.
Also I am having anxiety attacks, my speech and vocabulary seem to be affected, my ankles are swollen. My internist has been attentive to my concerns and has been providing referrals to specialists. I feel as though I am losing my mind, my thinking is not sharp and I feel like crying all the time.
What happened, where is the real me? … and is this Cushing’s or something else?
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June 21, 2013
MaryO
Adrenal Insufficiency, Ectopic, Empty Sella, Golden Oldies, Pituitary, Thyroid
ACTH, Adrenal insufficiency, Adrenocorticotropic hormone, biopsy, Carcinoid, Carcinoid Lung Tumor, CT scan, Cushing Syndrome, depression, Dr. Theodore Friedman, empty sella, fatigue, growth hormone, hair loss, Hashimoto's, headaches, Health, lungs, lymph, Magnetic resonance imaging, MRI, Oncology, painful joints, Recurrent Nerve, Sleep disorder, thyroid, thyroid cancer, tumor, vocal cord damage, Weight gain, xray
Another Golden Oldie, Lee had both pituitary and lung tumors. This bio was originally posted 06/07/2008.
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Whee1 where to start!. During 2002 noticed that I had extreme daily hair loss, weight gain even while on diet, depression and general feeling of not being well and decreased sleep and change in sleep pattern. Went to a psychologist who said I was “sane” and diagnosed me with depression related to organic disease.. but what? the fatigue increased – looked like a walking zombie and could barely make it through the day. I worked in a very high powered job. Started experiencing rapid heartbeat – and landed up twice in the ER. Before going to the cardiologist I had a chest xray and saw a shadow on my lung. As an ex-smoker I was concerned and ordered a CT with contrast. I am an RN with a background in Oncology. to cut a long story short, landed up at the oncologist who agreed with me regarding the need for a biopsy. I had to fire my GP who told me to wait another 6 months and do a repeat. I diagnosed myself with a carcinoid tumor, had the upper part of my right lung removed.
I kept on complaining of increased symptoms – moon face, fatigue, headaches, joint pain etc. Got diagnosed with sleep apnea. My oncologist pooh poohed everything but further staining of my lung tumor indicated that it was secreting ACTH – Cushings!
Had a brain MRI – my sella is totally empty and I have a 7mm tumor – not sure what even after 3 MRI’s. Had a full endocrine workup – the endocrinologist siad everything was fine! HA! Turned out I have Hashimoto’s with thyroid cancer – just had that removed. My thyroid was so swollen including the lymph nodes which made me suspicious for metastases- that they could not visulize the Recurrent Nerve – so now I have permanent vocal cord damage and cannot work.
Before this I decided to go to see Dr Friedman. What a blessing. I have adrenal insufficiency, he thinks intermittent Cushings from another carcinoid tumor, who knows where and extreme growth hormone deficiency. I need to have the pituitary tumor removed but am awaiting recovery after my thyroid operation.
I feel terrible – cannot really function, cry all the time, have severe headaches, joint aches, nausea etc. I hope and pray that the pituitary operation will fix up my problems.
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