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Diana M (dbear12003), Adrenal Bio

June 16, 2015

MaryO Adrenal, Other Diagnosis, Thyroid, Undiagnosed , , , , , , , , , , , , , , , 6 Comments

adrenal-location

 

I’m so tired I think about giving up on finding out why I’m so sick. I’m just so tired. But I won’t give up I believe these symptoms are at their beginning stages of cushings.. I want this taken care of before it becomes heart related… I have been seeing an oncologist/hemotolgist/internist..He said because I have the supraclavicular fat pads usually a sign of too much cortisol and a 1.5 cm adrenal adenoma that sometimes releases too much cortisol into the blood that he is scheduling me with an endocrinologist and a rhematologist… there are many test involved to diagnose cushings syndrome. .. I pretty much have them all except the heart problem thank goodness… and no red marks.

I guess my first step is to see if the adrenal tumor is releasing cortisol. .. then we will see what happens. ..I almost convinced myself that I was a hypochondriac, but I still kept getting sick. I have seen numerous doctors ..The main symptoms that bother me are the supraclavicular pads…the adrenal tumor, the b12 deficiency anemia, the fatty liver, weight gain mainly in my tummy, the unexplained flank pain, glucose reading of a 100 in my urine (when there should be none). My alkaline phosphatase reading of 126…and blah. .

Sometimes I am so sick I end up in the ER, but get no answers. This last visit was horrible; I waited in the lobby 5 hours and asked my husband to tell them the pain was getting really bad.

My last ER visit was at Saint Mary’s on 6/4/2015. (I had a severe migraine, right side abdominal pain, aching left arm and leg, and upper back squeezing pain). The test St. Mary’s did are online and after reading them I was thinking should I be checked for Cushing Syndrome?

I have a 1.5 cm left side adrenal adenoma.

Unexplained right abdominal pain.

Fatty liver

Fat above the collar bone that seems to increase and decrease in size.

(Pictures of this)

Severe Fatigue

The worst migraines headaches ever; headaches are so bad it feels like I’m being hit by a hammer on one side of my head.

At least twice a month I get very nauseated and vomit

Red cheeks (Dr. Black observed this and thought it may be Lupus; that test was normal)

I cry more than I ever have.

Weight gain (mainly in my abdomen), I walk a mile every other night (even though it hurts so badly, like my bones will break) I have been eating healthier, but the weight gain keeps going up.

I have insect bites that take forever to heal

I bruise easily and have muscle pain

Many times it feels like my legs are going to break in half when I walk

Upper back ache constantly

My left arm and leg have this severe ache deep into my bone

Weak muscles in my shoulders

Used to have Periods that were irregular. (had an uterine ablation)

I wake up many times during the night very very thirsty

I have a b12 deficiency

I have had tremors for at least 10 years and have been taking primidone for a very long time.

My Alkaline phosphatase has been high on my last 3 cbc’s

I have a spot on my liver that I never got rechecked

I have a 1.9 cm thyroid nodule

Scoliosis in my neck

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Diana B (Diana Brown), Undiagnosed Bio

April 25, 2014

MaryO Adrenal, Hashimoto's, Other Diagnosis, Thyroid, Undiagnosed , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , 4 Comments

Hi, My name is Diana. I have been sick for over two years now.

I have had kidney stones for the last 2 1/2 years, constantly passing them and have had three surgeries related to that.I still have seven stones left in both kidneys total. I didn’t feel well after the second surgery, and never recovered from the third which was last August. I have been to 3 urologists, thinking it was a urological problem. They all told me it was not connected to my stone problem.

I have been to two nephrologists and two endocrinologists and a cardiologist along with my Primary Care. The second nephrologist told me he knew what my problem was, Cushing’s Syndrome. That was when I went to my second endocrinologist because my own endo wasn’t on the same page, however she did no further testing and at first told me she thought I was borderline cushing’s followed by a phone call telling me she didn’t think I had it.

I have an adrenal adenoma in my left adrenal gland.I am going to see Dr. Theodore Friedman next month.

Here are my symptoms:

Easily out of breath (don’t know what you call the meter the doctors use to measure your oxygen but my oxygen is low on that meter)

Recently diagnosed with pre diabetes with random high glucose readings but did not test positive for Diabetes with a Glucose Tolerance Test

Tachycardia (never had this before getting ill) that wakes me up in the middle of the night, this started after my third surgery

Extreme fatigue/ as tired when I get up as when I go to bed.

Muscle weakness with any exertion, especially going up stairs and most days just walking across the room

Pallor

low grade fever on and off

blood pressure that fluctuates between 97/67 to 136/84 was always low and has increased frequently

Rising cholesterol over the last couple of years with no change in diet

Right flank pain

Low back pain

Burning pain in upper buttocks and upper back thighs

Stomach and groin pain

Extreme hip pain

Shaky and fine tremor in hands and sometimes my head also shakes

Mildly elevated cortisol (24hr urine cortisol test)

Have been diagnosed with osteopenia in the past

Hashimoto’s

I break out with clammy/flushing skin sometimes during the day but mostly at night.

Cannot tolerate carbohydrates (not for many years) /have many food intolerances

Easy bruising

So, that’s pretty much it. Thank you for letting me join!

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