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In Memory of Missy Young ~ January 29, 2017

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From Facebook:

 

missy-young

 

 

Missy had been a member of the online Cushing’s community for a long time and was well known to many.

More information as it becomes available.

In Memory of Malia Kenney ~ January 4, 2017

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in-memoryMalia died January 4, 2017 at the age of 40.

Her sister wrote on Facebook:

My beautiful sister Malia Kenney passed away this morning. She has been dealing with Cushings Disease for the past 18 yrs or so.

She has been in the hospital and physical rehab since November with 2 different types on Pneumonia’s. Her poor heart just couldn’t take it anymore.

She was such a beautiful person inside and out and I will miss her so much.

I LOVE YOU BIA
Malia has been a member of the Cushing’s Help boards since August 3, 2004.  Her profile is here:  Cushing’s Help boards
malia-kenney

In Memory: Ryan Tyler Monds ~ September 4, 2016

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RYAN TYLER MONDS (FONZ) December 29, 1981 – September 4, 2016 Ryan passed away peacefully and is free from illness and pain. Heartbroken by his passing are his mother Anne (Dave); father Ron (Charlene); brother Cody; stepsisters, Emily and Grace (Kyle); and nephew Nathan.

ryan-mondsAlso mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing’s Disease Awareness.

Respecting Ryan’s wishes, there will be no funeral service. A private family interment will take place at Sunnyside Cemetery.

Donations to Siloam Mission in Ryan’s memory would be greatly appreciated.

Goodbye came too soon. We love you. Miss Me But Let Me Go When I come to the end of the road And the sun has set for me, I want no rites in a gloom-filled room, Why cry for a soul set free? Miss me a little, but not too long, And not with your head bowed low, Remember the love that we once shared, Miss me, but let me go. For this is a journey we all must take, And each must go alone, It’s part of the Master’s plan, A step on the road to home. So when you are lonely and sick at heart, Go to the friends we know, And bury your sorrows in doing good deeds, Miss me – but let me go.
As published in the Winnipeg Free Press on Sep 10, 2016

In Memory of Jenni Moore ~ January 25, 2016

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A young woman struggling with ill health after developing a tumour died from an overdose after “illicit insulin” was brought into the Norfolk and Norwich University Hospital last year, an inquest heard.

Jenni Moore passed away at the intensive therapy unit on January 25, more than two weeks after sustaining brain damage while an inpatient at the hospital.

The 26-year-old from Halesworth had been admitted in December with complications from two unsuccessful operations to remove a tumour of the pituitary gland.

A Type 2 diabetic since 2002, Miss Moore suffered from emotionally unstable personality disorder and an abusive relationship, before a diagnosis of Cushing’s disease as a result of the tumour.

Consultant physician at NNUH Dr Franscesca Swords said Miss Moore had been exhibiting “alarming symptoms”.

“Cushing’s can cause Type 2 diabetes and needs much higher levels of insulin for it to work,” she told Norfolk Coroner’s Court.

“She was having incredibly low sugars, which is consistent with too much insulin. We had been reducing her dose steadily.

“We were giving her a fraction of the insulin she had been taking but her blood sugar was still low. Eventually the realisation came to ward staff there was something else at play here.”

Staff then began to discover insulin pens hidden in her room. During an investigation Norfolk Police interviewed Miss Moore’s partner Derek Soanes, who admitted he had brought her insulin pens at her request. No further action was taken.

Sarah Kennard, a lead health officer with Norfolk and Suffolk NHS Foundation Trust, said in a statement that during a risk assessment in March 2014 Miss Moore said she “thought she was insulin resistant” as a result of her Cushing’s.

Assistant coroner for Norfolk Nicholas Holroyd recorded a narrative verdict.

“Jenni suffered significant and unhappy health conditions for a number of years,” he said. “Cushing’s exacerbates the diabetic condition to make the patient yet more vulnerable to sugar or hypoglycemia so higher doses of insulin are needed to correct the situation, which made her resistant in a sense.

“There has been evidence insulin was being brought to her in the hospital she should not have had. I do not believe she intended to take her own life. Nothing had occurred to drive her to an extreme act.”

After the inquest Miss Moore’s brother Joe said: “I loved my sister and so did the rest of my family, and we miss her every day.”

From http://www.edp24.co.uk/news/diabetic_died_after_overdose_from_illicit_insulin_brought_into_norfolk_and_norwich_university_hospital_1_4614300

In Memory of Kassey Whiterock, June 30, 2016

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The information I have is very sketchy.  I’ll update when/if I can find an obituary.


kasseyKassey passed away on June 30th. Her sister said she died in her sleep.

She was in the hospital due to an adrenal crisis on June 21, 2016.

I don’t know the exact cause or if she was still in the hospital.

She had surgery April 28, 2016 for blood clots.

Kassey was only 20!

From a GoFundMe page her sister put up.

Kassey Whiterock passed away June 30th in her sleep. If you knew her, you knew allow badly she was sick and in and out of the hosipital. My mother and I are the ones arranging her funeral cost and on top of the sadness of loosing her we are not worrying about how were going to do this. The plans are for her to be cremated and taken to Arizona where we have family and reservation. If you could please find it in your heart to to donate it would be greatly appreciated and one thing my mother and I do not have to stress about in this time of grieving .

Thank you all so much.
Help spread the word!

 
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In Memory: Jill’s Father January 5, 2005

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Jill’s Father

January 5, 2005

Jill wrote: “In December 2004 my dad who had addison’s for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison’s for 22 hours, which they were completely aware that he had. 7 mistakes by hospital staff lead my father into shock and multiple organ failure. The doctor’s did think he would make it through the day. He survived for another 16 days until he contracted a hospital bacteria which crossed over into his brain and caused massive brain damage. Jan. 5, 2005 we took him off life support. I have been search the internet to learn more about Addison’s and why this happened.

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In Memory of Stacy Ollenberger ~ November 4, 2015

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Stacy’s sister posted on Facebook:
This is my beautiful sister Stacy she was diagnosed with cushings disease in 2005 at the age of 19 she had two pituitary surgeries radiation and finally an adrenalectomy we watched her suffer struggle and fight this disease for ten years there were countless Dr visits and pills she had to take daily until she passed away in her home on November 4 2015 at the age of 30 we miss her so much she has left a hole in our hearts but we will continue to bring awareness to this horrible disease hoping we can save someone’s life…

…Thank you so much for sharing this I think she struggled with the stigma of the disease she was doing so much better but she passed suddenly of adrenal crisis we were shocked we truly believed that she had this beat I know this group was so special to her she even added me to it I think to help me understand what she was going through you are all incredible amazing people to have the strength to battle through this everyday.

From Stacy’s blog:

Monday, April 27, 2009

Ambers Paper

My friend Amber is currently in school (taking Journalism I believe). She started reading my blog and had to write a paper for one of her classes, she asked me if it would be okay for her to write one about Cushing’s Disease and use my blog and/or me for information. I agreed. Amber found out quickly how hard it is to find useful information about Cushing’s Disease in Humans. Alot of sites are geared towards dogs and horses. She agree with the rest of us that it is retarded that there isn’t more information so that people could at least become more informed about this disease. Anyways this is a copy of what she submitted:

Living with Cushing’s disease
By, Amber Yake

When Stacy Ollenberger was 19 years old she began gaining weight at a rapid pace regardless of her healthy lifestyle, when she went to the doctor she was called a liar and told she was just getting fat.

“I saw six doctors before I was diagnosed,” Ollenberger said. “Doctors told me it was just weight gain and I had to change my diet and exercise.”

After seeing five doctors in two different cities, she finally saw a doctor who realized something was wrong with her. He suspected she had Cushing’s disease and referred her to a specialist in Edmonton.

“Finally I saw another doctor and he knew something was wrong. He didn’t know what so he did a bunch of tests and found out that I had extremely high cortisol levels,” Ollenberger said. “He had seen Cushing’s once before and suspected that is what I had but wasn’t a specialist so he referred me to Edmonton.”

According to Ollenberger, an excessive secretion of ACTH, which is produced by a pituitary tumour, causes Cushing’s disease. The ACTH then triggers your adrenal glands to produce excess amounts of cortisol. Symptoms include upper body obesity, round full face, increased fat around the neck, and thinning of arms and legs among other things.

Ollenberger showed all of these symptoms, however; since Cushing’s disease is so rare, none of the doctors she saw thought that is what she had.

“The specialists in Edmonton did not want to see me because they said Cushing’s disease is rare and they said that there was no way I had it,” she said. “They had all my blood work and stuff, my cortisol was more than 6 times higher than that of a “normal” person, and they told us that the tests were wrong and needed to be redone.”

Ollenberger was finally seen by specialists in Edmonton, AB and has since had two brain surgeries in attempts to remove the tumour on her pituitary gland increase. She feels angry at the medical system for not diagnosing her symptoms sooner.

“If I were diagnosed sooner the symptoms of my disease probably would not have gotten so bad and I probably would not have had to go through everything that I have had to—two surgeries, radiation and now I have to get my adrenal glands removed,” she said.

“I mean my family doctor made me feel like I was just a fat slob who didn’t eat right or exercise. He had been my doctor for years, and for me to gain so much weight so fast he should have known something was medically wrong.”

The doctors were unable to completely remove Ollenberger’s tumour. It’s not shrinking or growing. It is not an option to remove more of the tumour so her next option is to get her adrenal glands removed.

According to Ollenberger, this will make her body not be able to produce any more cortisol. Because you need cortisol to survive, after her surgery she will have to start medication to replace the cortisol that her body needs to survive.

“I will be on medication for the rest of my life,” she said.

Ollenberger is also working with her cousin to create a Cushing’s Awareness day in Canada. She wants to educate people so no one has to experience the things she has.

“It only takes one person to educate many and that is what I would like to do, bring awareness to this disease so others do not have to go through what I had to” she said.

 
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