Louise’s original bio was here.
Here’s a lil update.
So I went to the urgent care because of lower abd pain, much like previous pain from cysts that burst in my ovaries.
The doc did a CT scan, and to my surprise found bilateral adrenal hyperplasia. A referral was to an endocrinologist and after the usual testing found I have ACTH-independent macrodular bilateral adrenal hyperplasia.
I do not have the outward appearance of cushings per se, but over the last year the s/s have significantly increased. (short term memory loss, achy legs, increased facial hair, gained 10lb in a month *I only eat 1 meal a day, edema, generally feel like CRAP)
the doc sent me to OHSU because my case had him perplexed. He said usually patients come in c/o of s/s of cushing’s and then tests are ran to confirm. However, in my case, cushing’s was found incidentally in testing w/o the outward appearance so much.
I’ve now met with a surgeon to discuss a bilateral adrenalectomy (which at this point I want these things OUT!) but I am worried about the recovery post-op and quality of life.
From what I have read, people seem to feel that the risk of Addison’s is better than living with cushings. Is that the general consensus? I am so overwhelmed and I am having trouble getting out of this pity party for myself.
Louise added her Helpful Doctor, Maria Fleseriu, to the Cushing’s MemberMap
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