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rokchix86 (rokchix86), Undiagnosed Bio

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undiagnosed3

 

So, I’m in the process of being tested for Cushings. I have to have an MRI and CT scan pending bloodwork results for the contrast dye. My endocrinologist said I keep failing my cortisol tests. In other words something is always elevated.

For me my journey began a few years back when I was working out like crazy doing cross training and kickboxing 4 days a week and bike riding and taking long walks, I was also dieting. I kept gaining weight. I started needing maternity clothes. I had the hump already for a few years but was previously able to lose weight.

I assumed oin was menopause but nothing I did worked. The Drs did bloodwork which was all fine. I started having hot flashes do they put me on HRT which actually caused me to drop 5 lbs. Now I know something is off.

It took my BP shooting up suddenly along with my A1C reaching prediabetic range for the Drs to believe there really was something going on.

So here I am, I started my testing in June and now it’s Sept. Still no official diagnosis. I’m very tired and depressed. I don’t go out because I don’t want to see anyone. I can only wear stretchy pants and have a hard time finding long enough shirts.

I don’t recognize myself anymore. *sigh*

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Lauren, Undiagnosed Bio

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Hello. my name is Lauren. I am currently being tested for Cushing’s and am scared.

I have hypothyroidism/ Hashimoto’ s auto immune disease. Also my sugar is pre-diabetic.

I am 53 years old.  I don’t have a lot of the symptoms. I had gone into my endo and told him how rotten I feel. So he started with some testing. My ACTH number was 278 and my cortisol was 19.
This was around the middle of November.

However, in August i herniated a disc. I have been on oral steroids  for 5 days in August, a epidural steroid shot in my back in August, had back surgery end of September and put on a steroids for 5 days and had a steroid shot in my knee in  October. Also on a lot of pain killers and meds. I am off all meds for the last 4 weeks, off pain killers since October.

Also, I have had a very stressful and sorrowful last 10 years. I buried my 22 year old son 2.5 years ago.

I am hoping this is causing the reading.
I am glad I found this site. Thank you for reading this. I pray we all get well.

Thank you,
Lauren

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Sarah’s 14-year-old Son

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Fourteen-year-old son, who increasingly exhibits more and more signs of Cushings:

has had frequent illnesses: viruses, strep, pneumonia (two times) , & mono  x’s 6+ years

has had progressively worsening difficulty with learning “fuzzy thinking” and huge memory deficits x’s 4+ years

has had progressively worsening difficulty with emotional control x’s 4+ years

has had progressively increased fatigue  x’s 4+ years

has had progressively increasing central weight gain x’s 4 years

has had puffy eyes x’s 4 years

has had progressively slowed healing of insect bites and wounds on skin x’s 4+ years

has had easily bruised skin and acne x’s 4+ years

has had progressively worsening feelings of depression x’s 3+ years

has had progressively worsening feelings of anxiety with daily activities of life x’s 3+ years

has had stretch marks that faded from purple to flesh colored for 2+ years

has precocious puberty

has advanced bone age

has high testosterone levels

has been labeled as pre-diabetic

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