Home

Nicole S (NicoleS), Adrenal Bio

1 Comment

 

Hi, I’m Nicole. I’m 37 years old and was diagnosed with Cushing’s disease in May 2017 after suffering through a high risk pregnancy, early delivery and post partum pain.

I had a left adrenolectomy in August 2017 and have been recovering ever since. I take 27.5 mg of hydrocortisone daily and deal with steroid withdrawal symptoms each time I taper my medication. I have lost 40 lbs and am doing much better post surgery.

I’ve never met anyone else with Cushing’s and wouldn’t mind to connect with some others who understand the experience.

HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

Megan (Gaff228), Adrenal Bio

4 Comments

adrenal-location

 

Hi everyone. I’m a 32 year old female. 5’5″ and currently 178lbs. I have a unilateral adrenalectomy on Wednesday, June 22, 2016. I’m just under a week post-op and feeling pretty good.

My story begins 6 years ago. I had always been thin. Too thin. People commented on how thin I was. But that was just me. I was a vegetarian, active… but not actively trying to be skinny.

In June of 2009 I began to gain weight. By December I had gained almost 25 pounds. I went to every doctor I could think of…. and everyone told me the same thing: “Eat Less! Workout More!”. Having been pretty healthy to begin with- I couldn’t figure out what I was doing wrong. I got a personal trainer, signed up for a few 5ks and joined Weight Watchers.

Every day I was discouraged as the scale went up and nothing I did seemed to work. My hair went from dirty blond to VERY dark brown, thick but fine to very coarse and curly. I started to bruise really easily. I stopped sleeping. I got the buffalo hump (although it took me 6 years to find out what that was)….

I stopped wanting to see people or go places. I was embarrassed by my new shape and how easily I got tired doing things I had done so many times before.

3 states and 11 doctors- including specialists- later…. I had a routine CT scan done for ulcerative colitis. The tech that did the scan noted a tumor on my adrenal gland. My GI doctor asked me about it- I had never been told there was a tumor before- and sent me to an endocrinologist. That was in October 2015. My endo tested and tested and tested…. and finally- in April 2016 diagnosed Cushings.

So like I said, I’m a few days post-op. On 20mg of HC 2x a day right now. Still sore and puffy and hoping that I will see an improvement in weight/sleep/bruising soon!

I’ll keep you updated!

HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

%d bloggers like this: