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Kim M (MerryKim), Adrenal Bio

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Adrenal glands

59 years old female with Cushing’s since 12 years old. Right adrenalectomy 3/22/21.

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Nicole S (NicoleS), Adrenal Bio

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Hi, I’m Nicole. I’m 37 years old and was diagnosed with Cushing’s disease in May 2017 after suffering through a high risk pregnancy, early delivery and post partum pain.

I had a left adrenolectomy in August 2017 and have been recovering ever since. I take 27.5 mg of hydrocortisone daily and deal with steroid withdrawal symptoms each time I taper my medication. I have lost 40 lbs and am doing much better post surgery.

I’ve never met anyone else with Cushing’s and wouldn’t mind to connect with some others who understand the experience.

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Megan (Gaff228), Adrenal Bio

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adrenal-location

 

Hi everyone. I’m a 32 year old female. 5’5″ and currently 178lbs. I have a unilateral adrenalectomy on Wednesday, June 22, 2016. I’m just under a week post-op and feeling pretty good.

My story begins 6 years ago. I had always been thin. Too thin. People commented on how thin I was. But that was just me. I was a vegetarian, active… but not actively trying to be skinny.

In June of 2009 I began to gain weight. By December I had gained almost 25 pounds. I went to every doctor I could think of…. and everyone told me the same thing: “Eat Less! Workout More!”. Having been pretty healthy to begin with- I couldn’t figure out what I was doing wrong. I got a personal trainer, signed up for a few 5ks and joined Weight Watchers.

Every day I was discouraged as the scale went up and nothing I did seemed to work. My hair went from dirty blond to VERY dark brown, thick but fine to very coarse and curly. I started to bruise really easily. I stopped sleeping. I got the buffalo hump (although it took me 6 years to find out what that was)….

I stopped wanting to see people or go places. I was embarrassed by my new shape and how easily I got tired doing things I had done so many times before.

3 states and 11 doctors- including specialists- later…. I had a routine CT scan done for ulcerative colitis. The tech that did the scan noted a tumor on my adrenal gland. My GI doctor asked me about it- I had never been told there was a tumor before- and sent me to an endocrinologist. That was in October 2015. My endo tested and tested and tested…. and finally- in April 2016 diagnosed Cushings.

So like I said, I’m a few days post-op. On 20mg of HC 2x a day right now. Still sore and puffy and hoping that I will see an improvement in weight/sleep/bruising soon!

I’ll keep you updated!

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