October 15, 2026
Adrenal, Adrenal Surgery, Recurrence, Treatments Adrenal, Adrenalectomy, bilateral adrenalectomy, BLA 1 Comment
diagnosed with Cushing’s summer of 2020, had my left adrenal gland removed, and now have an adrenal adenoma on my right.
HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap |
October 12, 2026
Adrenal, Adrenal Surgery, In Memory, Recurrence, Treatments adrenal gland, Australia, endo, fracture, In Memory, itching, moonface, pain, recurrence, tumor, weight Leave a comment
I did not know Bonny personally but she was an Australian member of the Cushing’s Help message boards who rarely posted. Her In Memory page on the boards is here: http://cushings.invisionzone.com/index.php?/topic/43923-rip-bonny/
She was only 45 at the time of her death October 12, 2009. I’ve known far too many Cushies who have died far too young from this disease.
Bonnie’s Avatar
Bonny wrote July 1, 2009
I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. The worst symptom after the operation was 3 months of constant itching literally from my scalp to my heels and every inch of skin in between. I also had pain in every single joint of my body, along with all the pre op symptoms that took a long long time to improve.
Now two and a half years on, I have a second tumour… on the same side! No idea how that can be seeing as the gland is gone. My Endo is overseas so until he comes back I don’t know much, but they are running more tests and I am waiting for a surgery date to go through it all over again!
All the symptoms are horrible, but last time I particularly hated the fractures (still have a few of those),as they made life so difficutlt and painful, but also relly hated losing half my hair, and the weight gain and moon face. Feeling awful is terrible, but when you add the things that make you look horrible too, its pretty hard to take.
As a single parent, (divorced), life is very hard with Cushings as you don’t have anyone else to do the things for you that you cant do yourself, or help you with your own personal stuff.
Before and after Cushing’s pictures.
Rest in peace, Bonny!
Beth said it best on Facebook
October 12, 2026
Addison's Disease, Adrenal, Menopause, News Items, Pediatric acne, Addison's disease, Adrenal, anxiety, Autism Spectrum Disorder, body odor, CAH, Central Precocious Puberty, Congenital Adrenal Hyperplasia, menopause, menstruation, rash, Sensory Processing Disorder, steroids Leave a comment
A five-year-old girl from Australia who started menstruating at the age of four will soon start exhibiting signs of menopause, a result of Addison’s disease.
Emily Dover’s birth was absolutely ‘normal and happy’. By the second week, however, she started growing at an unusual rate. She was the size of a one-year-old by the time she turned 4-months-old. By the time Emily turned 2, she had developed breast buds, body odour and a rash on her skin that was diagnosed as cystic acne.
In addition to Addison’s disease, Emily has been diagnosed with congenital Adrenal Hyperplasia, Central Precocious Puberty, Autism Spectrum Disorder, Sensory Processing disorder and Anxiety Disorder.
The 5-year-old’s adrenal glands don’t produce enough steroid hormones.
Emily’s mother Tam Dover said her daughter is body conscious and aware that she is different from other children her age, reports Mirror Online. Sadly, the little girl is unable to understand what she is going through.
Constant pain and reduced mobility required Emily to undergo weekly physiotherapy sessions. At present Emily is five years old, and has started menstruating. After she starts a hormone replacement therapy, she will hit menopause, with all the side effects a woman over 50 years of age has to face.
“She hasn’t even had a chance to be a little girl. She’s having to learn how to put panty liners on for menstruating,” Tam tells Mirror Online.
Tam has set up a GoFundMe page to raise money to cover the ‘astronomical’ costs of her daughter’s treatments and medical care.
“Each time her growth was measured it was always way above the 99th percentile, and often 99th percentile for a couple of years above her age,” Tam wrote on the GoFundMe page.
~~~
October 12, 2026
Adrenal, Adrenal Surgery, Cyclic, Male, Treatments 24-hour urinary free cortisol, ACTH, adenoma, Adrenal, Adrenalectomy, aldosterone, anxiety, Blood pressure, Blood test, bone density, cortisol, cyclical, cyclical Cushing's, depression, dexamethasone suppression test, endocrinologist, glucagon, glucose, macro nodular adrenal hyperplasia, male, metoclopramide, Multinodular adrenal hyperplasia, pituitary, renin, scan, stress, UFC, vassopression, weight 1 Comment
Hi, I have been diagnosed with probable cyclical adrenal cushings. This all started after a scan on my abdomen for something unrelated revealed bilateral adrenal adenomas. When I googled adrenal adenoma everything fitted into place. I had been depressed , put weight on which were my main symptoms along with anxiety.
I was then referred to an endocrinologist in the UK who ordered some initial tests. I did Two 24hr UFC’s on consecutive days one came back at 36 and the one the day after was 91(normal below 50. Another time the normal range was 165 and the 1st one was 108 and the one the day after was 393.
I then did an overnight dexamethasone test and suppressed below 50 to 48. My endocrinologist then said he didn’t think I had cushings and said come back in six months and said it might be due to stress. I then got a second opinion and then the real testing started.
Roll forward four years and I have done about 30 – 24hr UFC’s numerous ACTH and full blood counts. renin and aldersterone, metoclopramide test, glucagon test, vassopression test, oral glucose stimultation test, day curve cortisol, spent a day in hospital walking round the ward for two hours, then eating a mixed meal and then sitting down for two hours while they tested my cortisol every hour . Did a Low Dose Dexamethasone Test and came out in a rash and my blood pressure dropped so got told I can’t do the test again. Had a bone density scan. I hIad a pituitary scan that revealed a lump inside my tongue and then had to have a whole body scan followed by a tongue biopsy(which turned out to be benign.
I have had about five CT scans on my adrenal glands and was referred to an endocrine surgeon this week who is going to perform a right adrenalectomy. The right one is 4cm in diameter.
He said looking at the scan he thinks it looks like macro nodular adrenal hyperplasia but wont know till pathology get to examine the specimen.
It’s been a long, long journey but finally looks like it’s coming to a conclusion now.
HOME | Contents | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio
October 10, 2026
Adrenal, Adrenal Surgery, Treatments Adrenal, adrenal surgery, cortisol, pain 1 Comment
My niece has had Cushing’s for 8 yrs prior to diagnois. She had her one tumor ridden adrenal gland removed 3 months ago. The remaining adrena gland had shrunk and is non-functioning. We are trying to understand the after affects of the adrenal gland removal and how long it will take for her body to adjust from a 300+ cortisol level to a controlable level so she can be pain free. She is in constant pain and the pain meds are not doing working.
Looking forward to hearing other people’s experience with an adrenal gland removal.
See you on th board!
Lil
HOME | Contents | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio
October 2, 2026
Adrenal, Adrenal Surgery, Sub-Clinical Cushing's, Treatments adrenal gland, Amiah macnodular independent hyperplasia, nodule, Subclinical Cushing's Disease Leave a comment
I have been diagnosed with Subclinical Cushings Disease.
Also, included in that diagnose is rare form of cushings; Amiah macnodular independent hyperplasia?
I have multiple nodulars on both adrenal glands with both of them being active.
I will be having both Adrenals removed.
HOME | Contents | Search | Adrenal Crisis! | Abbreviations | CushieWiki | Glossary | Forums | Donate | Interactive | Bios | Bios Listed by Date | Add Your Bio
October 1, 2026
Adrenal, Diabetes, Other Diagnosis, Undiagnosed 24-hour urinary free cortisol, adhesions, Adrenal tumor, Buffalo hump, diabetes type 2, hair, hirsuitism, moonface, scarring, sleep, sweating, tired, UFC, weight Leave a comment
Hi
I’m new to cushings and just looking for some insight into this disease. I’m 67 yrs and for the last 15 yrs I have not felt good and problems getting worse with no explanations in the past. After discussing problems with my Dr I was tested twice for thyroid but tests came back normal.
I do have other problems due to surgeries in the past, I have adhesions, scar tissue etc. I am now type 2 diabetic since last 5 yrs.
I was admitted to hospital because of stomach pain in July this year, I had a cat scan which showed I had tumours on my adrenal glands. The left being the largest. I am waiting to see the endo surgeon in November but have just finished some tests I’ve blood, 12 hr and 24 hr urine specimen. No results as yet.
My symptoms are as follows.
Sweating mainly evening time around 9pm
Can’t sleep until 3am, but could easily sleep on afternoon if I allowed myself.
Changes in face. When I look in mirror I often think this does not look like me.
I have put weight on but not a lot. I have been noticing a lot of facial hair on my face.
I had very, very thick hair and it’s now extremely thin. I have a type of rash on my face which has got worse over the years. It seems like my legs and arms are much thinner than they used to be but my abdomen is getting larger, mainly my upper abdomen. I don’t have any stria but have similar marks on my legs especially around my knees. My skin marks easily. I also seem to have a small buffalo hump on my back. Seem to have brain fog but usually put that down to age. Feel tired all the time.
Some things I can maybe put down to age.
I would appreciate any comments from members. I will let you know when I get results.
HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | CushieWiki
September 12, 2026
Adrenal, Diabetes, Male, Other Diagnosis, Steroid-Induced adrenal glands, diabetic, heart failure, Prednisone, steroids Leave a comment
i am a 65 year old male who was diagnose with cushings about 7 yrs ago
i have no adrenal glands that are working
i have to take prednisone to keep me from crashing
am now a diabetic and have heart failure
i spend 99% of my life in bed i am very weak and in pain most of the time , my family doctor keep giving me prenisone and never gave my body a break from this drug so now what caused me to be so sick is what i have too take to stay alive.
my doctors now really dont no that much about cushings so i feel as though i am just stuck ,
HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
September 2, 2026
Adrenal, Golden Oldies, Pituitary Adrenal, Golden Oldie, pituitary Leave a comment
I have a tumot in both the pitutiary gland as well as the adrenal gland and doctors dont know which is secreting very high levels of of cortisol.
HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
August 26, 2026
Adrenal, Adrenal Surgery, Treatments Adrenal, dry skin, hair loss, headaches, muscle ache, painful joints, Prednisone, split nails, surgery, weight Leave a comment
Was finally diagnosed in Feb of this year.
Had surgery mid March to take left adrenal.
Am still on 3mg prednisone daily. Lots of joint muscle aches, headaches, hair falling out, dry skin, split nails… sleeping a bit better but tired during day,can’t walk long or stand without feeling like I’ll hit the ground any minute.
Any weight lost right after surgery is back!
HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
Recent Comments