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Lili, Undiagnosed Bio

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58 yrs old
have every symptom

blood work 9.86
midnight saliva 0.27
urine not back yet

history: total thyroidectomy 10 yrs ago
cancer free of thyroid for 10 yrs

 

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Cynthia M, Undiagnosed Bio

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I am currently being tested for CD because after exhaustive research on AVN (Avascular Necrosis) related to other diseases. I have four known areas of AVN & after seeing the symptoms of CD, I realized may have this.

I also have numerous other diseases Lupus, Sjgrens, Hypothyroid, High BP, Arthritis, Fibromyalgia…

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Tim D (TimD), Undiagnosed Bio

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I’m going to tested and pretty sure i have it.

I don’t know what to put here except I was am glad I finally getting tested since reading stuff on the net I see I have a lot of the side effects and it sorta clears things up some,

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Caryl, Undiagnosed Bio

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Hello!

I’m 24 years old and I think I’m starting to have the initial symptoms of Cushing’s, albeit not that florid.

It starting last year in late 2017 when I am 100% certain that my face is getting bigger, and that I found it harder to lose weight despite adequate exercise and caloric limitation.

Fat started to accumulate generally. I also experienced bowel problems for which doctors diagnosed as constipation.

I have normal blood pressure and normal 75g OGTT results.

The other thing that has come up last month is a bruise about 2cm initially and is now 4cm in diameter and simply does. Not. Heal. 😦

My OB-GYN told me I have PCOS, and would like to start me on birth control pills.

I just want to know if it’s still possible that I’m in the early stages of Cushing’s. 😦
Thank you

My symptoms:

– Acne (non-resolving)
– Bowel problems/ constipation
– Non-healing wound
– Occasional palpitations

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Cerce H, Undiagnosed Bio

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Well I’m really sick now. I have had every diagnosis Known to man. To many Doctors.

26 years since my first symptom of excruciating unrelenting back, and neck jaw, and temple pain.

I am now seeing that these bizarre symptoms have started speeding up.

I have been off work since beginning of September. My Doctor still thinks it is my Hashimoto’s but she is testing me with the saliva tests and 24hr urin.

I am having trouble breathing. Im completly unable to do anything but go to the bathroom and one choir at a time. And tonight I feel like I have bone pain. Not to mention the heart palpatations and high then low blood pressure.

It’s so sad to be here. But I think it is were I belong.

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Roxanna (Dawn), Undiagnosed Bio

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I’m writing because im frustrated and sad. Today I got my results and doctor says negative for Cushings .
CORTISOL, FREE 24 HOUR.
F CORTISOL, FREE, URINE 36.2 Range 4.0 to 50.0

I have another appointment with an assistant to an Endocronologist but that’s not until next month March. I’m tiered of waiting.

I’m fatigued all the time. Insomnia. Emotional and currently tapering off venlafaxine. Lots of hair for a female. Camel hump.

Large abdomen. Low thyroid and high testosterone. Purple stretch marks. Edema in ankles and legs. Extreme joint paint and vitamin D deficiency. My teeth are decaying. I gained 50-60 pounds in 1.5years. Memory issues. Prediabetic and some hypoglycemia. Blurry vision sometimes.

I was hoping finally I would get treatment. I want to get an answer and help. I want to live again. I want to one day have anther child. I just know that I cannot plan on moving forward with life without taking care of this. I feel like I’m just in a hole.

I’m 31 years old.

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Lin N (Lin), Undiagnosed Bio

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HI there!

My name is Lin, I believe I may have Cushing’s based on what I have read. I was a normal person going about a normal life when I had surgery in 9/12. Immediately following the surgery, I gained 110 pounds in a year. I went through three physicians and no one could explain why I would gain weight like that.

The last doc in 2014 did do 24hr saliva tests. He told me then that my Cortisol was high but I never saw the test and honestly did not know what Cortisol was or what that meant. In hindsight, neither did he because no follow up tests were done nor was I sent to an Endocrinologist.

Between Feb 17 and Nov 17 my entire body changed. I had been very fit in the past and had a lot of muscle. My body now is nothing but cellulite. My hands and feet once slender now resemble Vienna sausages, my face is as round as a cantelope and the fatigue, depression, anxiety and feeling of unwellness was just to bad to ignore.

New doc in 2018 was first to take me seriously, I had read a few sites and knew to go in armed with a journal and pictures. He agreed that I may have Cushings and referred me to an Endocrinologist. Again my midnight saliva Cortisol twice high normal. So here I am, looking for answers, looking for someone more experienced than me. Come to me Yoda and help me find the answers I seek.

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