Hi,
Just a brief introduction as energy level is low today.
Have been told by three physicians including Pacific Neuroscience Institute and a Harvard physician that I have Cushing’s Disease.
It’s been a long road to diagnosis and I do not yet know when/if I will undergo pituitary surgery.
We are still collecting data.
Was active and outgoing person and now pretty sedentary mostly due to pain and obesity.
I am married, 3 children, and 7 grandchildren.
I am also an artist but due to loss of strength don’t create like in the past.
I would like to meet others who have this disease.
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Apr 14, 2018 @ 10:18:11
Hello Tamara, my name is Barbara. I too have Cushings. I have a recurrence of my tumor and I am currently taking medication. You are not alone.
Apr 21, 2018 @ 08:22:56
I see a doctor at Vanderbilt who specializes in Cushings. I am very grateful that I found her but she never talks about the fatigue. I really wish this was discussed more. I’m not even sure if I have the energy to continue to work. My family doesn’t understand this and quite frankly neither do I. Fatigue is listed as a symptom of this disease. I wish they would rather say days of extreme exhaustion.