Hi All. I’m a parent, registering unfortunately out of pure frustration over poor progress made here in Brisbane, Australia on my 15 year old daughter’s apparent two diagnoses – Cushing’s Syndrome and Hashimoto’s Thyroiditis.
This is hell for her as a teenager, as the chronic weight gain plus all the other acute symptoms ruin her life, and chip away at her once-immense self-esteem. I hope some success stories here and any of the beautifully helpful souls out there might point us in dark corners we haven’t been into yet.
Should I ever get even one reply from anybody out there, it will be adored and immensely appreciated – my devoted thanks in advance.
HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
Apr 26, 2018 @ 22:16:02
Hello I also have a teenage boy diagnosed with Cushings. He has been treated with medication for a year and a half and now we are back to the beginning. Off medicine to try to restart testing due to not finding a tumor yet. He is being followed at NIH in Maryland they have the largest research center for Cushings maybe you can check to see if your child would qualify for studies there.
Apr 30, 2018 @ 05:53:21
I too have Cushings. Initially I had my 1.8 cm removed and had about three years of feeling better. And I now have a reoccurrence . I started taking Cagaberline but I could not take it. I am currently taking Metyripone. I was up to 6 tablets a day but felt like I was ina roller coaster. She wants me to decrease back to three. This has been an emotional and physical nightmare. I’d love to talk if you need someone who understands.