Home

Deborah S, Undiagnosed Bio

3 Comments

undiagnosed

 

Hello all,

I do not know where to begin. For many years I have been struggling with these symptoms. I have proximal weakness, intolerance to stress, blood pressure fluctuations, hyperpigmentation, reactive hypoglycemia, sweating, severe dehydration, very bad confusion, vision, memory problems, physical body changes (hump, bruises), carb intolerance, and inability to exercise.

My endocrinologist did a workup for Cushing’s disease and the midnight saliva test was high. She brushed it off as “stress”. I am seeing a doctor now that says I have POTS and Dysautonomia. My doctor says I have inappropriate adrenaline rushes.

My body is falling apart because I haven’t found a doctor who will take my symptoms and test results serious. I would like to talk to others who are having trouble getting diagnosed and also to those who have gotten diagnosed who have a good doctor.

God Bless and Thank You,
Deborah

HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

Julie M (Jules), Undiagnosed Bio

Leave a comment

undiagnosed4
I am here because I believe my 26 year old daughter has cushings.

She went through puberty late, just as it started she had a strange episode where she couldn’t speak, walk and was confused. I took her to the ER, the ran different tests and sent us joke with b vitamins? Since that time (11 years ago) her behaviour has been bazaar, she had put on about 6 stone.

After the birth of her child 3 years ago she had gone a lot worse. Aggressive, numbness in both legs, depression, tingling in fingers, ties and around mouth, exhaustion, insomnia and the buffallo hump which she has had for years. I thought at first she had pernicious anemia but her b12 level is ok.

The haematologist is asking out gp to run tests he mentioned cortisol, I looked it up and couldn’t believe she has exactly the same symptoms, she has constant headaches and her legs are also covered in bruises because when she does eventually go to sleep she wakes up in another part of the house due to sleep walking.

She has just been given anti depressants and sleeping tablets which she does not take. I requested her medical records and went through them found out that she had lesions in her frontal lobe 11 years ago when they ran the tests. I also discovered that she had normal low TSH and very low t4 which points to the pituitary gland

Some days she feels ‘ok’ which is very rare. Most of the time she is suicidal and stressed. I’m waiting for her to be called for her cortisol tests, I just hope they are done at a time that she is going through her cycle.

Contact Jules

HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | CushieWiki

%d bloggers like this: