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Jason, Adrenal Bio

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adrenal-medulla

 

Growing up, I was always quiet and withdrawn. I struggled in school with memory issues and was always embarrassed by my excessive sweating. I continued to have issues growing up and then something happened in 2001. I would have fits of rage, massive sweating, psychotic episodes, periods of major highs and periods of massive lows.

In 2003, a psychiatrist labeled me bipolar, schizoaffective, ADD, ADHD, and major drepressive. I took their cocktail of meds to only get worse. I would end up in a mental hospital (5 times).

In approx. 2005, I was done with them and I stopped everything and I just hid behind closed doors so to speak. Also in 2003, I just found records(2015) of bloodwork I had done in 2003 which showed high Hemoglobin and also high Hematocrit levels with high WBC count. Nothing was mentioned to me about this. I keep struggling to get answers.

In July of 2014, I started massive pains in my stomach with rectal bleeding and major flank pain. I went to the doctor and he ordered a CT of my abdomen. The CT showed bilateral Adrenal masses(left was 2.2cm and right was 3cm). He said these were “incidental Adenomas”. I am waiting two more weeks to have my low dose cortisol test performed. When I did the 24h urine to rule out pheochromocytoma , all was fine except plasma metanephrines which was slightly elevated and the doctor said there was a “near zero” chance of me having a Pheo.

I am still having these symptoms: weight gain (20Ibs. since 2014), “moon face starting (2015), thinning, fragile skin that bruises easily, slow healing of cuts, bites and infections, decreased libido, Fatigue, Muscle weakness, Depression, anxiety and irritability, Loss of emotional control, Cognitive difficulties and worsened high blood pressure and pulse.

I now have a new mass in my right armpit. An ultrasound was inconclusive.

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Debra LF (DebraLF), Undiagnosed Bio

2 Comments

Hello, I  am in search of opinions please.

I present with most of the outward physical characteristics: age 57 “weight gain (obese which began about 1991 with a sudden 60 lb increase in 2 months and no explanation, physician had wanted me to go to a Mayo clinic for eval but at the time I could not spare time nor expense…and more recently continuring weight gain, easy bruising, (menses stopped at age 50, but don’t recollect too many probs except migraines), ravenous appetite, occasional trouble sleeping, depression or mood swings, anxiety, fatigue and altered mentation which is trouble concentrating or decreased memory and now diagnosed ADHD.

1-3. Physical abnormalities include new onset obesity, mine is more recent weight gain, primarily in the abdominal,  buffalo hump which presented suddenly a few summers ago but has been brushed off by doctors…, rounding and reddening of the face which began about ten years ago, thin skin, decreased muscle strength, high blood pressure, and excess hair growth on face, have to shave every day, some times twice, have 5 o’clock shadow, but I have already been to a local endocrinologist in Billings, Montana, there are only a couple in this sparsely populated area, and none of the lab tests showed anything particularly abnormal…open to suggestions, thanks so much…

Jessica (JessicaAnn), Undiagnosed Bio

1 Comment

I’ve been struggling with a lot of health issues for a really long time now, and so far I have been diagnosed with multiple different things only to have the next doctor say the previous one was wrong.  None of them have yet to be able to explain why I am physically in pain over stupidly simple things like doing laundry, cooking, cleaning, etc.

I recently got tested for Cushing’s because my current doctor thought that might be it, and I was certain I did as well based on how much it sounded like me.  However, my 24 hour urine test came back normal.  So now I’m back to where I started, with no answers and losing hope that I’ll ever find out what’s wrong with me.

 

I have previously been diagnosed with the following:

ADHD – 2005

Insulin Resistence – 2005 (later told that was incorrect)

Depression – 2005 (though it started long before then)

Migraines – 2010 (they started when I was in high school, though, so roughly 2001)

Hypothyroidism – 2010 (I was laster told my thyroid looked fine, though I’m on Synthroid)

PCOS – 2011

Fibrocystic Breasts – 2012 (No tests were done, and I’m fairly certain this is incorrect)

Vitamin D Deficiency – 2012

Vitamin B-12 Deficiency – 2012 (probably caused by spironalactone since it apparently causes that)

 

Both the PCOS and Fibrocystic Breasts diagnoses were made without the presence of cysts, though my ovaries are enlarged.

 

My symptoms have included:

 

Headaches

Migraines

Irregular Periods

Severe Menstrual Cramps

Severe Acne

Oily Skin

Heavy Periods

Fatigue

Difficulty falling asleep (I average about 3 hours per night)

Difficulty staying asleep

Weight Gain (started when I was doing 30 minutes of cardio + 30 minutes of weights every day plus watched everything I ate.  I still to crossfit several times a week and watch what I eat)

Hair Growth (upper lip, stomach, neck, chin)

Nipple Discharge

Skin discoloration (neck, under arms, under breasts, elbows, inner thighs)

High Blood Pressure

Fast Heart Rate

Constant Phlegm in my throat (has been there for years and never gets better/only gets worse when I get the flu)

Hoarse by the end of the day/night

Deepened Voice

Difficulty Concentrating

Forgetful

Large Pink Stretch Marks on waist

Lack of period (started about a year ago)

Back pain from doing simple things (has progressively gotten worse/included my hips, neck, and left shoulder)

Nosebleeds for seemingly no reason (most often in the bath tub/shower, sometimes just happens while driving, walking, doing nothing that should cause them)

Depression

Loss of appetite (I usually force myself to eat light meals at work just in case I end up hungry at some stupid time like 4:00 PM)

Nausea (literally almost every day)

Diarrhea (usually after eating)

Often Stressed Out

Irritability

Buffalo Hump

Round face (I actually have pictures of me when I weighed less than in previous ones, but my face was horrible round in the ones where I weighed less)

 

More than anything, I care about getting the back pain, migraines, and sleep issues fixed because that’s what affects my life the most.  One thing I noticed with the exercise is I’ve been able to build muscle in my legs and arms, but there’s been no change to my stomach, and I have dropped no weight/inches off of any of my body (since I know muscle will add pounds).  I have been to numerous doctors, including several Endocrinologists, one internest, a rheumatologist, a breast specialist, and several gynocologists to get things fixed.  All of my symptoms have progressively gotten worse over the years, and I’m just worried with the amount of pain I’m end that I’m one day not even going to be able to walk.  I’m at peace that whatever it is could eventually kill me, but I at least want to know why it’s happening before it does.

 

So far the only lab work I’ve gotten that showed anything was my Vitamin D and B-12 levels were low, and my Testosterone was high.  My doctor said this would not cause the back pain, though.  I just don’t understand how I can have all of these issues at 28 years old to constantly be told there’s nothing wrong with me to cause the back pain.  I have had no trauma that would have caused it (like a wreck or something), so I know this isn’t normal.

 

If anyone has any suggestions on any other tests I can do/possible causes, I would be extremely grateful.

 

Thank you for taking the time to read this.

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