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In Memory: Bonny Hamm, October 12, 2009

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in-memory

 

I did not know Bonny personally but she was an Australian  member of the Cushing’s Help message boards who rarely posted.  Her In Memory page on the boards is here: http://cushings.invisionzone.com/index.php?/topic/43923-rip-bonny/

She was only 45 at the time of her death October 12, 2009.  I’ve known far too many Cushies who have died far too young from this disease.

Bonnie’s Avatar

Bonny wrote July 1, 2009

I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. The worst symptom after the operation was 3 months of constant itching literally from my scalp to my heels and every inch of skin in between. I also had pain in every single joint of my body, along with all the pre op symptoms that took a long long time to improve.

Now two and a half years on, I have a second tumour… on the same side! No idea how that can be seeing as the gland is gone. My Endo is overseas so until he comes back I don’t know much, but they are running more tests and I am waiting for a surgery date to go through it all over again!

All the symptoms are horrible, but last time I particularly hated the fractures (still have a few of those),as they made life so difficutlt and painful, but also relly hated losing half my hair, and the weight gain and moon face. Feeling awful is terrible, but when you add the things that make you look horrible too, its pretty hard to take.

As a single parent, (divorced), life is very hard with Cushings as you don’t have anyone else to do the things for you that you cant do yourself, or help you with your own personal stuff.

Before and after Cushings

Before and after Cushing’s pictures.

Rest in peace, Bonny!

Beth said it best on Facebook

(I) lost a very strong, courageous friend to the very disease she suffers from.. your pain is gone now, Bonny.. Rest well and thank you for touching my life. ♥

Lajla, Adrenal Bio

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Hi!

My name is Lajla, born 1967, in Umeå, Sweden. In August 2012 I was diagnosed with Cushings Syndrome (adrenal). My health status by this time was terrible, with almost every part of My body affected – i.e. Heart, lungs, kidneys, brain, skelet, muscles, skin and a heavy weight. The very first time, I believe, I had symptoms fr.o.m. Cushings were in 2004, with adrenal pain and kidneys that reacted in a strange way. Tests results gave no clue. After that I’ve seen a doctor for several times, with new symptoms every time. The doctor didn’t believe me.

Summer 2012 I was in a very bad shape, with anxiety, fractures, insufficiens in both lungs and circulatory. I went to see another doctor, and that saved My life! In september 2012 My left adrenal gland (and the adenoma) was taken away. The result is called “very successfull”. Many of My problems are gone (or at least nearly). The weight is now normal, after the loss of about 92 lb. I still suffer from pain due to the many previus fractures and from the atrofia of the muscles. I also have adrenal insufficiens and fatigue. I can now do some easier work (that not needs muscles). For the first time since the ectomia I’ll have a real vacation! In about a week I’ll visit New York, something that I never thought would be possible!

Feel free to correct My english!

This site is the best for me to get information about Cushings. In Sweden there is none!

Thank you! 🙂

Lajla L

Kelly Jo, Pituitary Bio

3 Comments

I was first diagnosed with Cushings Disease in the fall of 2007 after having broke my hip (just by stumping my toe – no fall) and then deleveloping a PE which landed me in the ICU for 5 days.  And I thank God that these things happend to me because I was rushed to Parkland / UTSW and it was there that the dr started questioning why a 39 year old woman would break her hip in the manner that I did.  No other dr questioned this (I had even broked 2 ribs and was told that I must have been laying on the couch funny – WHAT?!?!).

I had been told for years by my dr that I was just obese and needed to diet – IT WAS EASY, he said.  (This is the same dr after he found out was I was diagnosed with said – I could have treated you for that Endo is my speciality.  Again – WHAT?!?!?)

It took the drs at UTSW about 5 / 10 minutes to look at me and say “We think you have Cushings”.  I had never heard of this before and can remember just asking can it be cured?  And being told about 70 to 80% of the time.

They still had to test me and that took a few months.  They all came back with results that I had Cushings and they found a tumor on my pituitary.

I had to wait a few months before I could have surgery due to I was on blood thinner to treat my PE / blood clots.  I had my first surgery in February 2008.  Drs said it went well and I should start seeing things go back to normal and that I should also start feeling better.  Well I never really did and it came back and I had another surgery January 2011.

And now they think it’s back yet again!  I’m mentally and physically done with this disease!  I just want them to take everything out of me that would make this horrible disease stay away!  I’m very emotional right now and feel completely lost and alone.

I have a great husband (can’t tell you how great he has been) and family that has stood by me the entire time and will always be there for me but as I’m sure a lot of you know sometimes you just want to ‘not be’.

With this go around I’m really struggling.  The first time I was almost cheerful cause I finaly knew why I felt so bad and worthless (I had had this disease for probably 10 years before I was diagnosed).  The second time, I was a little more bummed about it and this time I’m more depressed than I’ve ever been.  I know I’ll get thru this (again) but I’m tired of having to deal with it.

And I know I’m rambling but I’m feeling the need to let this all out.  I could go on and on but I think most of you know how I feel.

Thanks for having this site and for allowing me a place to go to vent.

Good luck to us all!

Kelly Jo

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