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Kayla, Pituitary Bio

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well I’m 21 years old i have had a pituitary tumor and addisons for almost 4 years.

Then last year my doctor took me off my addiosns med for no reason and now i am being diagnosed with cushing and its very hard for me because my doctor doesn’t know how to treat me and I’m very frustrated and scared.

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Sandy (KindredSpirit), Pituitary Bio

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I have been married for 33 years to a wonderful, patient man. Mother of 2 grown boys. Will be a gramma in May 2017.

I have been on the health journey for a number of years. It was a friend who gave me the name of Cushing’s and had I been tested. Tested?! Never heard of it.

Went online and saw the symptoms. Felt that the missing piece of the puzzle was found.

Made an appointment with my doctor in Sept. 2016. After initial urine test and blood work was sent to endocrinology.

Several tests later received confirmation just before Christmas. Awaiting MRI.

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Tammy, Adrenal Bio

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My name is Tammy. I am a Wildlife Biologist and Professional Licensed Snake Trapper located in Maryland.

I was just diagnosed with Cushings in the past week. I am so overwhelmed and confused and have been sick for quite awhile.

I do have to have a surgery as my right adrenal gland is dead. I have always been a very active and healthy person.

Right now I feel very alone and do not even know what to add to my bio.

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Matthew C, Pituitary Bio

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Hello,
I am retired from the United States Army and currently work as a dispatcher for the Blue Springs School District. A few years ago I started to have extreme anxiety. Of course, I went to a psychiatrist and was prescribed an anti-depressants. After a few months the anxiety would resolve. Unfortunately, over the years it would come and go and last for many months each time.

During the summer of 2015, the anxiety returned with a vengeance. I went to a new psychiatrist and was again prescribed an anti-depressant. However, this time it did not work. So, we went through a number of them without success. I researched to see what physical manifestation may be making me feel the gut wrenching anxiety and insomnia. I discovered the wonderful hormone called – YES YOU GUESSED IT – cortisol.

I then learned that cortisol came from the small, but powerful adrenal glands. That lead me to Cushing’s Syndrome/Disease. However, every site that I went to said that Cushing’s was very rear and effected women more than men. After, many more months of suffering and failing at the anti-depressant experiment, I went to my primary doctor and requested a blood test to determine my cortisol levels. The test indicated I did have high morning plasma cortisol.

My doctor referred me to an endocrinologist. I made a crucial mistake when I went to see him. He asked me my history and I told him about the severe anxiety. That planted a seed in his brain that I was just suffering from a psychiatric disorder. Nevertheless, he did order the test (Plasma cortisol, saliva cortisol and 24-hour urine free cortisol). All the test came back with higher than normal cortisol, but he kept saying that I was having “false positives.”

This went on for a number of months and then he basically fired me as a patient. So, I go back to my primary doctor and he refers me to my second endocrinologist. Guess what the story turned out to go the same way. I was fired again as a patient.

Before I go on let me add a little to the story: I do not have any of the physical signs of high cortisol. Basically, I suffer from anxiety, insomnia, brain fog, cognitive impairment and constipation. So, in their defense I don’t look the part of a person suffering from Cushing’s.

My next attempt was with the Veterans Administration. My endocrinologist there did the same test and was convinced something was wrong. She ordered a Inferior Petrosal Sinus Sampling. Finally, a test that did confirm that I had Cushing’s Disease.

The surgery to remove the tumor was accomplished on 9 August, 2016. However, the surgery failed. The worst part is that my current endocrinologist feels that my test results are “false positives.” I must say the entire process has been frustrating at best.

I do have a radical plan in place with a endocrinologist overseas who has agreed to do the surgery that will cure my Cushing’s Disease once and for all. I call this the final solution. Yes, this is extreme but my symptoms are getting worse and I don’t feel like playing the game anymore.

In addition, my symptoms are getting worse as my blood pressure is getting higher and higher.

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