My bushings has been caused by corticosteroids. I have been on steroids or 40years daily.for severe brittle asthma. I have been on prednisolone and iv steroids on hospital admissions for years. I did suffer from cushingoid symptoms caused by fluid but they settled as the steroids were reduced. About 4/5 years ago i was struggling with the extremely high doses of prednisolone so I was put on intramuscular Kenalog of 40ml/mg every 2 weeks. This was to be a short term fix but went on longer.
Unfortunately this was not monitored and reduced at all. Even though I was experiencing pretty obvious symptoms of bushings I could not gt anyone to look at this so I got worse and wore.
Eventually I saw my Resp Consultant on 4thJuly and got the diagnosis. This was a horrible relief.
Immediately I was put on a 2.5ml/mg education every 2 weeks to try to lower the cortisol levels.
Bit like closing the gate after the horse has bolted! To say this is hard is an understatement as what with the side effect from the cushing as everyone will know this is hell there is the withdrawal from the corticosteroids too. They all morph into one so I don’t know what is happening.
I have tried to get some answers from the medical profession but can’t get any information at all.
The Cushings side effect weight, stretch marks etc are still getting worse and I can only think that this is because I am still being loaded with steroids.
I appreciate that my bushings is caused by steroids and not a tumour but if any one has any advice how to cope with this I would be sooooooooo grateful.
All my best wishes to other sufferers.
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Oct 24, 2017 @ 14:35:18
Hi Lynne. I have the same thing. I am seeing a MD with a masters in nutritional biochemistry. I am making great progress. Got rid of brain fog, am able to control the weight gain and have more energy. I have a theory that people with Cushing’s and those recovered can’t properly process starchy foods. And it doesn’t show up until the starches turn to sugars and we get diabeties. To prove this theory I am asking people to change their eating habits drastically. But it will be worth it if it works.
You MUST take out all grains, all dairy and all starchy vegetables ( google the vegetable to find out if it is starchy) You can eat meat, chicken, fish, non-starchy vegetables, some nuts, seeds and fruits. I also took a digestive, a pro-biotic and Serrapeptase for imflammation. If you want support I will be here for you just contact me janbarrett7@hotmail.com. Wishing you good health. Please let me know how you are doing on this new lifestyle.