Hi everyone! My name is Kate and I am 32 yrs old.
I’ve had back pain since I was 14, and 6 years ago I went through a series of steroid injections to try to relieve the pain. I ended up with steroid induced Cushing’s Syndrome.
I gained 80 pounds in under 8 weeks, grew a huge buffalo hump, lost more than half of my hair, had a horrendous headache that hospitalized me, gained the deep stretchmarks, grew facial hair etc etc etc. You name it, I had it. All in a matter of 8 weeks after my final steroid injection.
Fast forward to today and I still have all of the weight, my hair didn’t grow back, I still have SEVERE facial flushing every single day (the flushing alone is ruining my life) and I have yet to find a good, knowledgeable Endocrinologist who can help me. I did have a plastic surgeon remove the buffalo hump so I feel much better about that. We have only caught my cortisol level high 1 time. I’m not on any meds for the Cushing’s and I’m miserable.
Just hoping to get to know some other people battling this awful disease with me. Thanks for having me.
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Aug 31, 2016 @ 22:54:23
Hi Kate, I am Julie and I am 47 being tested for cushing’s syndrome. Adrenal adenoma (2). I understand what you are going through and would love to know if you ever received help and treatment as I have been having a hard time getting anything done other than test after test after test. I hope this finds you doing well and on your way to recovery being that it has been a long time since you have been on here.
Jan 16, 2018 @ 16:19:54
Hi Kate, Thank you for sharing your story. My daughter was recently diagnosed with Cushing Syndrome as a result of her use of corticosteroids also. She has stopped taking them completely, but it’s only been 5 months, and she is still suffering from the debilitating affects (weight gain, depression, hair loss, back pain, back hump, etc.). Is there any light at the end of the tunnel? Did your symptoms eventually subside? I can’t seem to find any good news stories for those who have Cushing Syndrome from corticosteroid use..