Hello all,
I do not know where to begin. For many years I have been struggling with these symptoms. I have proximal weakness, intolerance to stress, blood pressure fluctuations, hyperpigmentation, reactive hypoglycemia, sweating, severe dehydration, very bad confusion, vision, memory problems, physical body changes (hump, bruises), carb intolerance, and inability to exercise.
My endocrinologist did a workup for Cushing’s disease and the midnight saliva test was high. She brushed it off as “stress”. I am seeing a doctor now that says I have POTS and Dysautonomia. My doctor says I have inappropriate adrenaline rushes.
My body is falling apart because I haven’t found a doctor who will take my symptoms and test results serious. I would like to talk to others who are having trouble getting diagnosed and also to those who have gotten diagnosed who have a good doctor.
God Bless and Thank You,
Deborah
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Interview with Deborah March 30, 2016 | CushieBlog
Mar 19, 2016 @ 13:01:20
Apr 26, 2016 @ 19:53:41
i got some results back I have a high 24 hour urine cortisol. My diurnal cortisol are as follows. 8 a.m. 1.37, 1 p.m. 0.11, 5 p.m. 0.22 and midnight 1.65. I had an afternoon cortisol of 3.4 and my doctor says I have low cortisol. It is all so confusion to me,
Sep 04, 2017 @ 03:00:57
Hello deborah,
I feel the same as you. No doctor seems to put everything together did you get a diagnosis
May 02, 2019 @ 11:13:30
Hi Deborah,
I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?
Lynn
May 07, 2019 @ 08:51:44
Hi
Its taken me years of frustration to slowly get a diagnosis.
I have small neurophathy
Achalasia
A connective tissue disorder
Autoimmune thyroid (get tpo antibodies checked even though normal thyroid results)
Pre diabetic
Slow gastric emptying
Sjogrens
Had genetic test for eds not got results
Keep fighting for diagnosis i did
All these autoimmune diseases and no inflamatory blood markers
Janine
May 10, 2023 @ 06:43:59
I have exactly the same problem, diagnosed with pots but think it’s cushings – did you ever get an outcome?