40yo female, in the process of diagnosis, high cortisol confirmed by UFCC (4x) & saliv cort (2x) & serum, high ACTH, DHEA, & MSH; did not suppress on DST (0.5mg dose), suppressed on high dose (1.0mg), 7mm pit tumor by MRI. Waiting for decision point from endo, considering IPSS or transphenoid. Aware of BLA as an alternative but that seems to be roundly not recommended as first-line treatment from all the reading I’ve done.
Primary question is if anyone has experience with Dr. Daniel Kelly in Santa Monica? He works with my endo and was recommended. I am open to nationwide if necessary, but if he ranks at the top anyway then would go with him.
Is QOL typically worse after surgery? If so, what’s the point?
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Jul 19, 2015 @ 17:58:27
Hi, Rox. First off, I think the doctor you’re thinking of is Dr. Daniel Kelly (not David). If this is true, I can edit your bio for you.
Secondly, your quality of life might be better, it might not but getting treatment is essential. Untreated Cushing’s is a fatal disease.
You are correct. I’ve never heard of a BLA as a first option for a pituitary patient. That would usually be suggested only after several failed surgeries and trying some of the various meds now on the market.
Best of luck to you!