May 1, 2013
MaryO
Diabetes, Hashimoto's, Undiagnosed
ACTH, Adrenocorticotropic hormone, biopsy, Blood test, Buffalo hump, Conditions and Diseases, cortisol, cushing's syndrome, Endocrine Disorders, eyes, fat, fatigue, goiter, hair, Hashimoto's, headache, Health, hirsuitism, insulin resistance, muffin top, nodule, osteopenia, pain, saliva, sleep, Thyroid scan, UFC, urinalysis, Victoza, weight, X-ray computed tomography
I have been seeing the endo for the last couple of weeks. Lots of blood tests, saliva test, 24 hour urine test. Thyroid scan, with nodules, thyroid biopsy benign, small goiter,and diagnosed with hashimoto.
Currently type 2 diabetic fairly controlled with Victoza, but very insulin resistance. First blood tests showed high cortisol, high ACTH, second series of blood tests showed normal to high cortisol and still high ACTH. Doctor said possible cushings. Have had extreme fatigue, beard on chin. Muscle and bone pain consistently. Wake up with headache and extreme fatigue.Bone scan diagnosed with osteopenia. Appt. with endo tomorrow to get results of 24 hr. urine test. Salavia test said was normal.
Have problems with sleep, sleep all day off and on, or have days when I cannot go to sleep at all. She said that I had the hump, muffin top, and belly fat, lean arms and legs. Eyes are puffy all the time now. Have problems losing weight even though I eat healthy all the time, and have excluded gluten, sugar, and going to go diary free. Eat lots of vegetables and fruit as well as a little protein. Have not had a mri or cat scan yet. Probably will be next on the list. Will post after my doctor’s appt. tomorrow and update my bio.
I have a lot of symptoms of cushings and she mentioned this with my second doctors visit after the first series of blood test, but wanted to do other tests to make sure.
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April 30, 2013
MaryO
Adrenal Surgery, Cancer, Ectopic, Treatments
ACTH, Adrenocorticotropic hormone, bilateral adrenalectomy, BLA, Carcinoid Lung Tumor, cortisol, cushing's syndrome, endocrinologist, Endocrinology, Family medicine, hair, Health, hirsuitism, Internal medicine, lungs, testosterone
Diagnosed in 2003 with a Carcinoid Lung Tumour which was surgically removed in May 2003.
After a number of years of “not feeling myself” and consulting with the family doctor, it wasn’t until I showed him hair growth on my face and asked him if we had completed all and every test possible related to hormones.
Two tests to do; one was cortisol and the other testesterone. Results were in the next day, showing cortisol levels four times the normal range. Bingo! it was like I had won the lottery.
A flurry of additional tests were conducted, a visit to an Internal Medicine Specialist and finally a referral to the Endocrinologists at the University Hospital. On meeting the endocrinologist her first words were: “It’s very nice to meet you. I’m very excited you were able to come in today’. Is she nuts, I thought. Since when is a doctor “excited” to meet a patient? This was the beginning of a most wonderful patient/doctor relationship and it continues today along with the full team of endocrins at this hospital.
It was confirmed I had Ectopic Cushing’s Syndrome in February 2011. My health deteriorated rapidly with no sign of any tumour which was likely the cause of the extremely elevated ACTH and Cortisol levels. A Bilateral Adrenalectomy was performed in May 2011 and in November 2011 the elusive lung tumour was sighted in the same location as the one removed in 2003. It has not grown in the last six months so it is being left “undisturbed” at this stage.
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