October 23, 2025
MaryO
Undiagnosed
blood type, survey, UCSF, undiagnosed
Hi there, my name is Britt. I am 20. I am going in for testing with the UCSF clinic in one month!
I am scared and excited because I have had Cushing’s symptoms for 4 years now and NEED to find out what is wrong with me. I actually found this webpage looking for answers AND I had an idea after reading an article about doing a survey on Cushing’s and Blood Type. It’s self-reported of course but I’d appreciate it if anyone would take it, whether or not you’ve been diagnosed!
Thanks and wish me luck! 🙂
https://www.surveymonkey.com/s/2CND967
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May 8, 2019
MaryO
Interview, Pituitary
24-hour urinary free cortisol, BlogTalkRadio, Cabergoline, cavernous sinus cavity, cortisol, depression, Dr. Anthony Heaney, Dr. Anwar Sandeep, headache, interview, Kathy C Interview, metformin, nausea, pituitary, podcast, potassium, radiation, sella turcica, Signifor, transsphenoidal, UCLA Pituitary Tumor and Endocrinology Program, UCSF
Kathy was diagnosed with a pituitary tumor in 1991.
At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 days. They said they could not remove all of the tumor.  She is now on Signifor and Cabergoline.
Read Kathy’s entire bio at http://cushingsbios.com/2014/04/27/interview-may-7-with-kathy-c-pituitary-patient/
Listen to Kathy’s Interview here.
Kathy’s Interview is also on the CushingsHelp Podcast
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June 16, 2015
MaryO
Addison's Disease, Adrenal, Adrenal Insufficiency, Adrenal Surgery, Pediatric, Pituitary, Pituitary Surgery, radiation, Recurrence, Treatments
Addison's disease, adrenal crisis, Buffalo hump, candidiasis, Cushing's disease, Dr. Charles Wilson, infection, leg pain, moonface, pediatric, pituitary, radiation, rapid heart rate, recurrence, skin, transsphenoidal, UCSF
The pituitary gland
High schoolvl senior, I was finally diagnosed with Cushing’s Disease. Extreme leg pain, rapid heart rate and overall sick feeling drove this 17 year old nuts. Huge moonface, buffalo hump and torn skin on torso, stomach, thighs and arms did not help.
By the Grace of God, a brilliant pediatric endocrinologist found me and sent me to UCSF for transphenodal surgery. There, other genius pediatric physicians gawked at my monster appearance. The famous Dr. Charles Wilson went into action.
Six years later, my tumor grew back with a vengeance. My cortisol levels reached 3000 as a ferocious candida infection spread all over my body.
My second operation was followed with radiation treatments. I lost my baby shortly thereafter. Years later, childless and fatigued, I was informed that the radiation therapy caused the remainder of my pituitary gland to disintegrate.
I now have secondary Addison’s disease and nearly died one month ago from an acute adrenal crisis. I am lucky to be alive…..swollen and all.
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May 8, 2014
MaryO
Interview, Pituitary
24-hour urinary free cortisol, BlogTalkRadio, Cabergoline, cavernous sinus cavity, cortisol, depression, Dr. Anthony Heaney, Dr. Anwar Sandeep, headache, interview, Kathy C Interview, metformin, nausea, pituitary, podcast, potassium, radiation, sella turcica, Signifor, transsphenoidal, UCLA Pituitary Tumor and Endocrinology Program, UCSF
Kathy was diagnosed with a pituitary tumor in 1991.
At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 days. They said they could not remove all of the tumor.  She is now on Signifor and Cabergoline.
Read Kathy’s entire bio at http://cushingsbios.com/2014/04/27/interview-may-7-with-kathy-c-pituitary-patient/
Listen to Kathy’s Interview here.
Kathy’s Interview is also on the CushingsHelp Podcast
Like this:
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