June 16, 2015
MaryO
Addison's Disease, Adrenal, Adrenal Insufficiency, Adrenal Surgery, Pediatric, Pituitary, Pituitary Surgery, radiation, Recurrence, Treatments
Addison's disease, adrenal crisis, Buffalo hump, candidiasis, Cushing's disease, Dr. Charles Wilson, infection, leg pain, moonface, pediatric, pituitary, radiation, rapid heart rate, recurrence, skin, transsphenoidal, UCSF
The pituitary gland
High schoolvl senior, I was finally diagnosed with Cushing’s Disease. Extreme leg pain, rapid heart rate and overall sick feeling drove this 17 year old nuts. Huge moonface, buffalo hump and torn skin on torso, stomach, thighs and arms did not help.
By the Grace of God, a brilliant pediatric endocrinologist found me and sent me to UCSF for transphenodal surgery. There, other genius pediatric physicians gawked at my monster appearance. The famous Dr. Charles Wilson went into action.
Six years later, my tumor grew back with a vengeance. My cortisol levels reached 3000 as a ferocious candida infection spread all over my body.
My second operation was followed with radiation treatments. I lost my baby shortly thereafter. Years later, childless and fatigued, I was informed that the radiation therapy caused the remainder of my pituitary gland to disintegrate.
I now have secondary Addison’s disease and nearly died one month ago from an acute adrenal crisis. I am lucky to be alive…..swollen and all.
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June 9, 2014
MaryO
BlogTalkRadio, Interview, Undiagnosed
BlogTalkRadio, child, endo, food log, interview, pediatric, podcast, weight
Stacy writes in her bio
MacKenna is my daughter. I am in desperate need of assistance regarding her weight.
She is 6 years old and weighs about 95 pounds. At four, she was normal to underweight.
First clue – she gained 10 pounds in three months. Of course doctor’s wanted a food log …. however, as her parent, I knew something was wrong.
So much to say, I NEED to help my baby and am hoping someone on this board can point me to a good pedi endo (I am currently on my second). I have pictures to show the progression of her changes. Her growth pattern is abnormal as she does not gain height while she gains weight and vice versa.
I believe it is cyclical cushings. And if it isn’t, I still need help as this is going to kill her – her little frame cannot hold much more.
McKenna’s mom will be interviewed June 11 at 6:00 pm eastern in BlogTalkRadio. Archives will be available later in the Cushing’s Podcast.
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