First diagnosed with Cushing’s November 1999
Petrosal sampling confirms Cushing’s in left lobe of pituitary March 2000
Transphenoidal surgery June 2000 (not successful)
From July 2000 – September 2001 on 200 – 400 mg of ketoconazole
Lost weight from July 2000 – November 2000
Began significantly gaining weight again in March of this year (2001)
Currently reshowing all signs of Cushing’s (for a while the buffalo hump and purple striae all but vanished – oh well – they’re back, as is the mid-riff bulge – urgh!)
Still hiking, biking, swimming, and cavorting and refusing to let this whole thing get me down (yeah, right – who am I kidding)
Endocrinologist currently encouraging me to consider stereotactic radiosurgery as I have made it clear I have no desire to allow anyone to remove my adrenal glands (not that I am any more interested in having my pituitary irradiated when it’s a hit or miss deal).
And that’s my history.
Edith T
from Squamish, British Columbia, Canada
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