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In Memory: Millie Niss ~ November 29, 2009

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  Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu.  She was only 36 – how sad. Millie Niss (1973-2009) We were saddened this past week to learn of the passing of Millie Niss, the Buffalo-area-based poet, writer, digital artist and web-based installation designer, who died Nov. […]

In Memory of Dr. Edward Hudson Oldfield ~ September 1, 2017

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Dr. Oldfield was MaryO’s surgeon at the NIH November 3, 1987.  This was back in the olden days of transsphenoidal surgery.  I honestly expected to die but this man saved my life. Dr. Edward Hudson Oldfield quietly passed away at home in Charlottesville, Virginia, surrounded by his family on September 1, 2017. Born on November 22, […]

In Memory of Kalyn Allen, June 28, 2017

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We lost another Cushie sister today. Kalyn Allen’s husband posted this on Facebook: This afternoon my beautiful wife and mother of my children completed her path in this life so that she may be reborn again into the next. She was surrounded by her children, family, and friends when she transitioned very peacefully. She now […]

In Memory of Kate Myers ~ June 23, 2014

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Kate (Fairley on the Cushing’s Help message boards)  was only 46 when she died on June 23, 2014.  Her board signature read: After 2 failed pit surgeries and a CSF leak repair, BLA on Sept. 11, 2008 w/Dr. Fraker at UPenn Gamma knife radiation at UPenn Oct. 2009 Now disabled and homebound. No pit, no […]

In Memory of Sarah Fraik ~ June 13, 2011

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  Sarah recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease.  She died on June 13, 2011 after a brief illness at the age of 28. More information will be provided when it becomes available. ~~~~~~~ Sarah F’s mom posted this: “we will be setting […]

In Memory of Sherry Carlson ~ May 30, 2020

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  Sherry passed away this afternoon, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received over the years. We (her family) are processing, but will share details about her celebration of […]

In Memory of Kathryn McBride ‘Bridie’ Miller ~ May 1, 2007

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From the Message Boards at http://cushings.invisionzone.com/index.php?showtopic=21816 “My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of […]

For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio

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  Adapted from Participatory Medicine This is kind of a “cheat” post since it’s a compilation of other posts, web pages, message board posts and some original thoughts. I’m writing it to submit to Robin’s Grand Rounds, hosted on her blog. For all of my early life, I was the good, compliant, patient. I took whatever pills […]

In Memory: Dr. Edward Hudson Oldfield, September 1, 2017

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Dr. Oldfield was MaryO’s surgeon at the NIH November 3, 1987.  This was back in the olden days of transsphenoidal surgery.  I honestly expected to die but this man saved my life. Dr. Edward Hudson Oldfield quietly passed away at home in Charlottesville, Virginia, surrounded by his family on September 1, 2017. Born on November 22, […]

In Memory: Kalyn Allen, June 28, 2017

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We lost another Cushie sister today. Kalyn Allen’s husband posted this on Facebook: This afternoon my beautiful wife and mother of my children completed her path in this life so that she may be reborn again into the next. She was surrounded by her children, family, and friends when she transitioned very peacefully. She now […]

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