Hi, I’m Nicole. I’m 37 years old and was diagnosed with Cushing’s disease in May 2017 after suffering through a high risk pregnancy, early delivery and post partum pain.
I had a left adrenolectomy in August 2017 and have been recovering ever since. I take 27.5 mg of hydrocortisone daily and deal with steroid withdrawal symptoms each time I taper my medication. I have lost 40 lbs and am doing much better post surgery.
I’ve never met anyone else with Cushing’s and wouldn’t mind to connect with some others who understand the experience.
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Feb 10, 2019 @ 21:28:44
Hi! I too had a left side adrenalextomy. I had a difficult labor and severe high BP heading in to childbirth. Had high BP leading to other problems for years after until diagnosed eight Cushings in September of 2015, with tumor on my left adrenal. Shortly followed by removal of thyroid for tumors. Still a journey but happy to help.