I am an avid runner run about 15 miles a day then in April I gained 50 lbs my worst nightmare. I gained 50 lbs in two lbs with no change in activity or eating. I was ashamed and embarrassed I didn’t want anyone to see me my friends or family.
Then I broke out in hives all over my body I went to urgent care. They saw a large hump on the back of my neck thought I had cushings. I saw 10 different doctors in la. One passed me off to another.
It was a nightmare then I went to Mayo Clinic where she thought I had cushings from an external source ( September ) she told me to just wait and everything would go back to normal. Even though there was no outside steroid source.
Then I wasn’t getting better in the end of October I went to two doctors in nyc, who didn’t do anything.
Finally I found an artical on cyclical cushings and sent it to my doctor at Mayo Clinic. She agreed with me and told me to come in. My cortisol was finally high now and she’s running other tests I hope I’m fixed soon.
I’m so sad and depressed.
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May 20, 2021 @ 11:55:40
I have a very very similar experience. I’m scheduled to go to the mayo clinic in Minnesota in July. I live in Massachusetts so it’s a major decision but I am desperate. Like you I’m a very active runner, cycler, CrossFit etc. and I just I started progressively gaining weight, so much slowly in the beginning and then more rapidly in a bit in the past year. Oddly in 2019, around the time the weight game started happening, I broke out in hives all over my body and angioedema of my feet lip trunk. They had me in the ICU because they thought it was anaphylaxis. It wasn’t and nothing was ever determined as far as the cause. How was your Cushing’s ever confirmed and what was your source?