Hi my name is Stacy Boswell. I am 42 years old and from Indiana.
I have tumors on both adrenals and one on my pituitary. I have had 2 saliva highs and 4 dex tests where I did not suppress, with low to normal ACTH and high cortisol.
I am meeting with a 3rd endocrinologist in February due to my my last endo dismissed me stating I was a complicated case. She refused to do an IPSS stating that there isn’t enough clinical proof but offered to put me on a new trial drug in which I declined.
I am unable to work and trying to get long term disability through my job I did have prior to all of this. I also have hashimoto and had a total thyroidectomy this past July. I as well have had a complete hysterectomy back in 2002 due to pcos, endometriosis and cervical cancer cells. I have had genetic testing done for MENS 1 and AIP I am awaiting those results as well as waiting the results for Sjogren’s syndrome test. I as well just been recently diagnosed with occipital neuralgia.
All the specialists that I have seen all state these things would more than likely subside if the Cushings was treated. I feel at a loss and hopeless. Indiana is a dry state for cushings specialist and I do not have the means to travel so I’m just stuck.
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Feb 16, 2018 @ 23:04:37
Hi
Please let me know what they find! have hashi, ON, endometriosis, adrenal failure, and cysts. Thanks!
May 02, 2018 @ 17:26:46
I’m in Indiana as well and undergoing testing now to confirm Cushing’s but I’m not impressed with the Endo my family doctor referred me to. I saw specialists listed in Chicago. Is it possible for you to travel there?
May 03, 2018 @ 13:38:21
Who did you see in Chicago?
Jul 01, 2018 @ 19:46:38
Lisa
I have very complex issues also with the pcos and all how it basically attached to new system. It’s very very hard to treat for the many unknowns. I have found odd dr whom thinks outside box typically works best. I have found immunology study immune system aka chronic disease so I have found better working this way then Endocrinlogist. Same story to many different times and they dismiss the issues you are feeling.
Aug 27, 2019 @ 00:36:14
I’m in Indiana also .I have lots of other autoimmune diseases as well.I will see the endrocnoligist Dr for the 1st time this week August 29th 2019 to see if I have Cushing disease .I would like to hear from you and see where your at with your health care at this time,please feel free to contact me back via email. .. thank you! sueholman985@yahoo.com