Hi. For the last couple of years I have had different symptoms. I’m 45 and feel like I’m 70. I think it started about 3 years ago. I would break or fracture something and it would take forever to heal. I gained over 60 lbs. I’m always tired yet don’t sleep well. I look like I’m 9 months pregnant but skinny arms and legs. Stretch marks on body. Round red Face that constantly feels hot. My back has a hump and my neck has fat pads. Finally, prehypertension. I also have intense itching especially in a soecific area. Oh, let’s not forget anxiety and focus issues. .
I had enough. About 7 months ago I began going from doctor to doctor. Every test came back fine and they dismissed me. Finally, I went to an endo. She tested me for Cushings. I gad 5 tests and all came back positive. All this took time but I tried to be patient. I know this is horrible but I was actually happy to finally have an answer to my issues. I then had a CT scan and found an afonona in my left adrenal gland.
I had surgery a week ago today. I’ve heard so many different stories of figuring out if they have cushings but little about their recovery. I’m hoping to hear people’s recovery stories. I’m actually much better than I thought I’d be. I’m weak, still some pain at surgical sight, out of breath, and very emotional. Also, hard to do an intellectual activity before feeling overwhelmed.
Can you all share your journey? I’m taking 40 mg of hydrocortisone a day. I was wondering if anyone had itchiness as a symptom. Doctors have told me that they haven’t heard of that as a symptom of cushings. It is horrible with me and am hoping it will go away with this surgery. I feel like it has gotten better.
Looking forward to hearing about some recovery stories and feel free to ask me anything to help other understand what they are going through.
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Sep 20, 2017 @ 02:43:13
Watch what your eating as in gluten i found this made my whole body itch and got this with cushing s x
Oct 24, 2017 @ 14:21:41
Good advice from Jackie. I found it is more than gluten. Im seeing a MD with a masters in nutrionaol biochemistry. If I eat the wrong foods my Cushing’s symptoms return. I believe people with Cushing’s can’t process starchy foods. And it doesn’t show up until the starches turn to sugars and we get diabeties. This is why Cushing’s reoccurs. It iis just my theory. I am hoping to prove it right but I need people with Cushing’s willing to change their eating habits.
You MUST take out all grains, all dairy and starchy vegetables (this is very important and you would have to google each vegetable to find out if it is starchy) Would you be willing to participate in this experiment? You could contact me anytime for support at janbarrett7@hotmail.com or thru this site I’m NotSoCushie. Good luck and good health.