Originally from December 28, 2007
I recently completed a clinical trial at NIH because of an adrenal nodule. I also have hyperplasia of both adrenals.
Turns out I have primary hyperaldosteronism (which had previously been diagnosed) as well as elevated cortisol. I was told I don’t have Cushings but could develop it. Yet I do have unbelievably excessive sweating and have just begun to develop what I assume to be a buffalo hump–a lump at the top of my spine between my shoulders that is hard to the touch and painful.
My ability to handle stress is nearly nil; I sleep upward of twelve hours and more a day and yet get exhausted doing the littlest things. I’ve lost a lot of weight over the past two years because of nearly daily diarrhea–which I now believe may be caused by a deteriorating liver as I also have Heptatis C–and yet I have a fatty paunch which is beginning to show stretch marks I didn’t know I had.
My skin heals poorly and bruises very easily. I have splotchy skin, i..e, dark patches and totally pigment-less patches on my face. I was told my hypothalamus produces too much CRH which, in turn, triggers the ACTH to produce too much cortisol.
With two, possibly three, chronic conditions, I am beginning to worry about returning to work after my medical leave of absence ends this January.
I was on the pheochromocytoma support board until my diagnosis, and I know how helpful it was to have a group to turn to. I’m glad to see this one looks like a similarly supportive and informative group.
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Oct 24, 2017 @ 15:00:43
I am seeing an MD with a masters in nutrional biochemistry and am making good progress. I have a theory that people with Cushing’s can’t properly digest starches in their food. And it doesn’t show up until the starches turn to sugars and we become diabetic. To prove my theory I am looking for people to join my experiment. You MUST take out all grains, all dairy and all starchy vegetables (google each vegetable to find out if it is starchy). You Can eat meat, chicken, fish, non-starchy vegetables fruit, some nuts and seeds.On this lifestyle the hair on my head grew back, I got rid of brain fog, was able to stop gaining weight and had more energy. The sacrifices were worth it to get a better quality of life. Would you be willing to try this out? If so I will offer you support. You can contact me at janbarrett7@hotmail.com or on this site at NotSoCushie. Take Care. Wishing you good health. jan.