Originally posted November 20, 2008
Hi, my name is Kathleen. I’m 24 years old and live in southern pa.
I had my two pituitary tumors removed 8/22/08 and I’m still not feeling any better really.
Over the last decade I have been diagnosed with cushings, Lyme, lupus, endometriosis, sinus
tachycardia, fibromyalgia, arthritis, asthma, the list seems to go on and on.
And I guess I had it in my head that once I had this surgery that I would magically get better and move on with my life – go to college, get an apartment, get my license, and hopefully lose all the weight so maybe one day I could be confident enough to start dating again.
Its been nearly 3 months and I seem to be losing hope. My neurosurgeon says that the pathology reports showed “essentially” nothing (still not sure what that means) and that he doesn’t need to see me again.
The ENT who did the surgery was wonderful but can’t really help with anything but making my
nose/sinuses/gums ok. 🙂 And endocrinologists – I have been seeing them for ten years, and never met one whom I liked or who was helpful. Right now I’m getting a full cardio workup to try to fix my weird rhythm.
All of this is being done at Georgetown in D.C, but I’ve been all over the east coast. I don’t know, I guess I hoped maybe you’d have some insight or hopefulness to latch on – cause I put all my eggs in this basket and I feel like I’m about to drop the basket.
Thanks for listening,
Kathleen
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Feb 06, 2017 @ 21:57:02
Finally someone around my age diagnosed with this. I’m 23 and had a pituitary tumor removed in November. I feel 100000x better even though it’s only been 3 months. I live close to you, I had my surgery done at Johns Hopkins in Baltimore md. My endo, neurosurgeon and ent doctors are wonderful. I still keep in touch with my endo through email and he really cares. I can help you with names and all if you’d like,just reply back!
Mar 15, 2017 @ 23:41:44
Hi Julie, thank you so much for sharing your journey through your surgery! How are you feeling now ? I hope your recovery is going smoothly for you😊
Mar 16, 2017 @ 22:34:40
I feel SO much better, I was 166lbs two days before my surgery on November 9th and today I am 125lbs almost back down to my normal weight! I still get a little tired sometimes but no where close to as tired as I was when I was sleeping from 7:30pm-9am! Definitely getting my strength back. I feel like mid January though I was looking almost like my normal self again!
Jan 03, 2018 @ 18:53:54
hi Pituitary Moon
i would love to hear your reference
did you see dr. Salvatori at John Hopkins
Dec 03, 2017 @ 15:23:55
My endocrinologist said I was just looking for a reason for the way I looked
As well as told me my stretch marks weren’t pink enough
Even though I dont know if I have Cushing’s disease yet
The symptoms are there yet the doctor just totally ignored them
Honestly, I wish they’d just say, gee I don’t know…
Dec 03, 2017 @ 15:32:00
To reply better to your comment
Pituitary surgeries usually require follow up and after care
You can look for a second opinion report from an expert hospital
Who specialize in pituitary disorders
Jan 03, 2018 @ 18:50:42
if it is of any help, I read melatonin can prevent further spreading of piguitafy tumors , which may help if you have a pituitary tumor
Jan 03, 2018 @ 18:51:50
sorry… pituitary tumors, i really have to find my tablet pen.