In Memory of Missy Young ~ January 29, 2017 Sophie M (Sophie), Pituitary Bio
January 30, 2017
MaryO Insulin Resistance, Other Diagnosis, Undiagnosed 24-hour urinary free cortisol, dexamethasone suppression test, insulin resistance, symptoms 2 Comments
43 yr old female- trying to get diagnosed
I have about 41 out of 42 Cushing Symptoms
Have been diagnosed as insulin resistant and as of recent was told I am not insulin resistant
Have had one Dex Suppression test – negative and 2 – 24 hour urine negative
I am at a complete loss- Can I have Cushing’s and these test come back negative?
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In Memory of Missy Young ~ January 29, 2017 Sophie M (Sophie), Pituitary Bio
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Feb 01, 2017 @ 09:42:15
Annette, I posted your bio at http://cushings.invisionzone.com/index.php?/topic/54189-can-you-help-annette/ also, hoping someone could help.
So far, you have a response.
klukluklu said “She must test more. Those negative tests don’t mean anything if she has many symptoms that warrant further searching. I have even less symptoms than the textbook ones and my highs are few in comparison to my normal ones but enough to raise an eyebrow.
I’m also negative for Dex Suppression and normal midnight salivaries, but my Endo still suspects I have it (He’s a cushing’s and HPA expert) calling it Intermittent Cushing’s which means I have burst of hypercortisolemia at random times
I hope she reads this and doesn’t give up“
Jun 26, 2017 @ 14:44:23
I have had every lab run for autoimmune that you can imagine in the past 6 months. My SED rate is high along with a few others that are off somewhat, but nothing definitive. My Endo does not believe in Saliva test? He is a fan of the Dex Suppression. I am repeating the Dex sometime soon. I am not sure it will make a difference for the Dex test if I think I am high or low? He stated at the last appt. that the skin on my hips was thinning and the stretch marks were from Cortisol- Now to catch a high- Get the test ordered to catch a high. The waiting is the worst, but I am hoping they can figure something out soon.
Thanks so much!