undiagnosed6

Hello
My daughter has recently been tested for cushings syndrome. She is nine years old.

when she was 5 years old she went completely blind and forgot everything. her OT thinks it might have been a mini stroke. The doctors could not find anything wrong with her. She always had a desteneded belly the doctors told me it was constipation. this year in Feburary she developed a buffalo hump. the doctors told me she had a flesh eating bacteria. I took her to the hospital they told me it was scoliosis.

After fighting with a doctor I was finally refered to Pittsburgh childrens Hospital. I was seen by an onocologist. He ran the cortisol test we are still waiting to hear the results.

When I was a child in 3rd grade I went from a size 7slim to a 16 plus in one year. I also have cognitive delays. we both suffer from migerains and other people in my family have the depression. my cousin had some rare bird disease and my mom had the diabetes high blood pressue and died of small cell carcinoma. If it wasn’t for the buffalo hump I would have never known that this condition existed.

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