After six years of trying to get pregnant I finally decided to see an endocrinologist who suggested I might have a tumor on my adrenal glands and prescribed by bromocriptine to make it shrink. Two years later I was able to carry a pregnancy to term and delivered a healthy baby girl. After delivery I was never able to breast feed, kept gaining weight, had horrible stretch marks and odd bruising.
One year later I still had not had my period so I went to my OB-GYN. She shot me full of progesterone and estrogen, which did nothing so I went back to the endocrinologist. That day my BP was 173/121 and I weighed 180lbs (I’m 5’4″).
On first sight he diagnosed me with Cushing’s Syndrome and after a series of tests over many months it was confirmed.
On November 25, 2011 I had surgery to remove the macro adenoma that had completely consumed my pituitary gland. Ever since then my immune system has been weak and I’m tired all the time. Despite losing weight and exercising and eating right I just can’t seem to feel good.
I take .88 Levothyroxine, 2.5 prednisone, 2 doses of desmopressin and hormone replacement. Most days I wish I had never had the surgery. But, through it all I have done my best to live.
6 weeks after my surgery I went back to grad school and graduated on-time with honors, but since then I haven’t been able to keep a job outside of the home because I get sick if someone sneezes within 100 yards of me, and lets not even talk about the stomach bug.
I’ve been hospitalized twice and now carry injections of dexomethozine and anti-nausea meds with me everywhere I go. I’ve told my doctor about my fatigue and he refuses to prescribe Growth Hormone, but I’ve learned to suffer through it.
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May 06, 2016 @ 05:26:27
For your fatigue, have you tried a sleep medicine doctor? And for your immune problems, have you tried an immunologist?
Apr 15, 2017 @ 21:03:06
I’m sorry to hear you are still struggling. I have wondered when I would ever feel good again. I had surgery January 2017 they said I’m in remission I’m trying to slowly go off my medicine and let my pituitary to wake up. I would love to have someone to talk to and both give and receive support sometimes family and friends aren’t help or get tired of hearing about it.