My Comments: (will add more later, written by wife)
Pituitary surgery 12/15/05 but not able to get it all.
33 treatments of radiation in April/May 2006
April 2007 still have Cortisol level of 166, back on Ketaconozole
remaining tumor measures 2.6 cm x 1.8 x 1.4
Cushing’s has lead to:
diastolic heart failure
gaining 60+ pounds
dry heaves (anyone else have this??)
anxiety, depression, restlessness
currently monitoring Cortisol levels, to have another MRI in August
keeping adrenalectomy as last resort
would appreciate tips/suggestions….