I’m so tired I think about giving up on finding out why I’m so sick. I’m just so tired. But I won’t give up I believe these symptoms are at their beginning stages of cushings.. I want this taken care of before it becomes heart related… I have been seeing an oncologist/hemotolgist/internist..He said because I have the supraclavicular fat pads usually a sign of too much cortisol and a 1.5 cm adrenal adenoma that sometimes releases too much cortisol into the blood that he is scheduling me with an endocrinologist and a rhematologist… there are many test involved to diagnose cushings syndrome. .. I pretty much have them all except the heart problem thank goodness… and no red marks.
I guess my first step is to see if the adrenal tumor is releasing cortisol. .. then we will see what happens. ..I almost convinced myself that I was a hypochondriac, but I still kept getting sick. I have seen numerous doctors ..The main symptoms that bother me are the supraclavicular pads…the adrenal tumor, the b12 deficiency anemia, the fatty liver, weight gain mainly in my tummy, the unexplained flank pain, glucose reading of a 100 in my urine (when there should be none). My alkaline phosphatase reading of 126…and blah. .
Sometimes I am so sick I end up in the ER, but get no answers. This last visit was horrible; I waited in the lobby 5 hours and asked my husband to tell them the pain was getting really bad.
My last ER visit was at Saint Mary’s on 6/4/2015. (I had a severe migraine, right side abdominal pain, aching left arm and leg, and upper back squeezing pain). The test St. Mary’s did are online and after reading them I was thinking should I be checked for Cushing Syndrome?
I have a 1.5 cm left side adrenal adenoma.
Unexplained right abdominal pain.
Fatty liver
Fat above the collar bone that seems to increase and decrease in size.
(Pictures of this)
Severe Fatigue
The worst migraines headaches ever; headaches are so bad it feels like I’m being hit by a hammer on one side of my head.
At least twice a month I get very nauseated and vomit
Red cheeks (Dr. Black observed this and thought it may be Lupus; that test was normal)
I cry more than I ever have.
Weight gain (mainly in my abdomen), I walk a mile every other night (even though it hurts so badly, like my bones will break) I have been eating healthier, but the weight gain keeps going up.
I have insect bites that take forever to heal
I bruise easily and have muscle pain
Many times it feels like my legs are going to break in half when I walk
Upper back ache constantly
My left arm and leg have this severe ache deep into my bone
Weak muscles in my shoulders
Used to have Periods that were irregular. (had an uterine ablation)
I wake up many times during the night very very thirsty
I have a b12 deficiency
I have had tremors for at least 10 years and have been taking primidone for a very long time.
My Alkaline phosphatase has been high on my last 3 cbc’s
I have a spot on my liver that I never got rechecked
I have a 1.9 cm thyroid nodule
Scoliosis in my neck
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Jun 17, 2015 @ 03:50:49
Don’t give up just yet. Rest is good, take time away if you need it. But you know your body better than anyone, there’s hope in finding reasons.
Jun 17, 2015 @ 16:34:36
Thank you, maybe it’s not this. But if it is I was told the adrenal tumor can be removed and I would soon return to normal. 🙂
Jun 17, 2015 @ 17:02:53
I’ve heard the same as well. If it’ll make things better, then it’s all worth it.
Jul 09, 2015 @ 03:05:01
I am going through a lot of the same stuff you are. It has been an exhausting. I passed 3 kidney stones in one month, but had been having tons of issues that I attributed to my battle of kidney stones off and on for 20 years. I had a CT scan recently, which found a 1.8 cm adrenal adenoma on my right adrenal gland. I was referred to an Endocrinologist and finished blood work and my first 24 hour urine collection.
My cortisol was elevated in the first collection, so I am doing my second collection to confirm this elevation, tomorrow. Sad, but I’m hoping it shows elevation again, and that the tumor is “functioning”… That would mean an answer to all the crap I’ve been going through.
I don’t have a lot of the “typical” Cushing’s symptoms, like the red striae, buffalo hump and what not, but I have had the weight gain, face mooning, acne, depression, anxiety, sleeping problems, swelling, excessive urination, and a few others.
I hope you find answers!! Best of luck. If you want a venting buddy, you’ve got one!! 🙂
Aug 14, 2015 @ 13:21:50
Hello
Glad to find others that sound like what I am currently and have been experiencing. My flank pain radiates to my shoulder and down to my groin. Does anyone else have that symptom? I have a really long list of symptoms and just found a 2 cm adenoma on MRI waiting on CT scan to confirm. And just did labs. Hope to have answers soon. Wondering how you all are doing?
Dec 20, 2018 @ 22:47:10
This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat