I have suffered from severe asthma and environmental allergies since I was a young child. They used steroids as a way to help me breathe and stop hives.
As I got older, things just got worse. More steroids, more allergy medications, etc.
Two years ago I started losing energy, lacking the urge to eat, having daily headaches, gaining weight even with exercise and sleeping a lot. I thought it was stress as I was finishing my doctoral degree. My regular doctor tried everything.
Finally, she sent me to Mayo in Minnesota and they diagnosed me with exogenous Cushing’s. I had the buffalo hump, striae and moon face. They did not give me any medications but told me to stop taking steroids. Also, they found that my Vitamin D was a 9 so they loaded my Vitamin D. I slowly started to feel better for the first six months. I now seem to be going back downhill. I am exhausted all the time. I have no idea where to turn. I am starting here and also looking for a local endocrinologist, otherwise I may return to Mayo.
HOME | Contents | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio
Aug 07, 2017 @ 03:07:18
I go through phases wondering if it’s cushing syndrome I have , or some form of it, but since I have been taking amphetamines and stronger for so long I don’t really feel like I deserve to be diagnosed and fix it like anyone else who never used or abused drugs .
Sep 28, 2017 @ 07:17:19
I would recommend going back to the Mayo Clinic or calling the University of Virginia pituitary center – that is where I am being treated. They are ranked in the top 10 nationwide for treatment of pituitary disease and also endocrinology.
I spent years battling symptoms and seeing doctor after doctor before we could align them all into a Cushing’s diagnosis. Don’t dismiss your symptoms or your gut feeling or the severity of the disease.
https://med.virginia.edu/neurosurgery/services/pituitary-tumor-program/
Feb 28, 2018 @ 09:27:39
What allergy medications do you take now after the Cushing’s syndrome? I have Primary Ciliary Dyskinesia, immune deficiency, allergies, allergic asthma. I have also had steroids over the years for migraines, ankle surgery and other injuries. My endocrinologist thinks that from all the medications it is messing with my sugar and adrenals . I’m going cold turkey for two weeks without meds so I can get a cortisol test it’s horrbile . My allergies are horrible.