No formal diagnosis yet. Self-diagnosis by overhwhelming clinical suspicion, including CT scan evidence of growing left adrenal adenoma.
Clueless endrocrinologist who has missed the diagnosis for the whole two years I have been consulting her, including missing an acute state caused by prescribed Prednisone that resulted in my being pushed into her office in a wheelchair. She didn’t even comment on that. :-O
I am booked in to see another endocrinologist in late January – the earliest appointment I could get. Meanwhile I have some fairly serious symptoms that are getting worse. I hope I make it to surgery.
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Feb 05, 2014 @ 20:56:31
Your comment about the acute state caused by prescribed prednisone struck a chilling feeling. My wife died two years ago from cancer. During the examination by the oncological surgeon, he diagnosed her as having also been suffering from Cushings for years (she also had a adrenal adenoma). One of many illnesses that she had was an acute reaction to prednisone (temporary paralysis of hip) about five years before her final illness. At the time, it was simply ascribed by the neurologist as an inappropriate prescription by the primary of prednisone. Despite abundant evidence that she must have had an underlying illness (all the physical symptoms and multiple serious illnesses), no doctor, and there were many, even suggested Cushings. Good luck. Most doctors don’t seem to have a clue when it comes to Cshings.