In 2011, I realized I had Cushing’s Syndrome. I was a 30 year old male with several complications: swollen feet, swollen legs, stomach looked 9 months pregnant, hair fell out, memory loss, couldn’t sleep, couldn’t eat, diabetes, mood swings, depression, urination every hour during the night, bright pink stretch marks, etc.
After changing my doctors several times for misdiagnosis, I was finally tested for Cushing’s Disease/Syndrome. I contacted the National Institute of Health and doctors advised me to come in immediately. I survived 2 months living at NIH, while doctors ran several tests to determine if I had Cushing’s Disease or Cushing’s Syndrome. I had Cushing’s Syndrome and my tumor was found in my right adrenal gland.
After sucessful surgery, I did not have the energy to get out of the bed for almost a month. I was taking almost 10 pills per day including cortisol, high blood pressure medication, potassium, etc. I lost 40 pounds after surgery going from 208 pounds to 168 pounds and after 6 months, I was taken off all medication. I beat Cushing’s Syndrome and Diabetes!
Now, I am 32 years old. I am in great shape and finally got my life back. I do not have any complications. The only sign of Cushing’s Syndrome are the stretch marks and a scar from removing the tumor from my adrenal gland.
I just wanted to meet other people going through a bad disease and help out if possible. I am here if anyone has questions or just want to talk.
~ Brian
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Jan 08, 2014 @ 12:51:30
thank you for telling us your story. I am just diagnosed with cushings and do not know where the tumar is as of yet. I am guessing this is a long process. I didnt even know what cushings was until my dr had me tested for it.
Feb 15, 2014 @ 23:50:22
Hi Brian, Had you been tested for more hormones? Did they come back high? How long had you been without a -right- diagnosis?
Mar 17, 2014 @ 08:21:47
My daughter is being tested now for cushings . She is 26 and has probably been showing symptoms for the last 4 years. Moon face, large hump on back, weight gain in stomach area, depression, flakey scalp, mood swings, fatigue, back pain including spasms, facial hair and a weird symptom that I have never seen mentioned and may n
ot be a symptom for cushings but her legs itch after showering to the point of tears ! Probably have missed saying some of the other symptoms . I have read that sometimes the test show negative when it is positive . Can you explain what tests you took and if you had any false negatives ?
Nov 05, 2017 @ 22:47:46
Hi Brian, I am really glad to hear that you made a fantastic recovery. What is your advice on recovery and what to expect ?