I was diagnosed with Cushing’s in 2003 . I was 34 years old, a single Mom of an 8 year old daughter and a Ceritified Nurse-Midwife. I had a pituitary microadenoma and it was removed via TSA nov, 2003. I had remission until 2006.
I knew I was getting sick again but my labs were inconclusive for many months. I had reduced my work hours and still too fatigued to work safely.
In August of 2006 I went to my primary care doctor and told her I was also having a great deal of trouble with my memory such as remembering medications that I gave all the time and even remembering how to look them up. I stopped working that day.
I had 1/2 pituitary removed in November 2006 with no remisssion. I researched options and got other opinions NIH, and Mass General and everyone agreed on radiation…the BIG dose ond day kind. Remission achieved a few months later.
I am still in remission currently, but not who I used to be. Still requiring naps a couple of times a day and to bed early . I have a lot of trouble concentrating, so I can’t drive more than 30 minutes or as my friend says, “my inner canine comes out” and I start staring out the window…kind of forgetting i’m driving. It’s funny but not really. what a wild ride this has been.
It is easy to feel like the only one with this disease, I’m glad you all are here to make it a friendlier place.