I was diagnosed with Cushing’s in 2003 .  I was 34 years old, a single Mom of an 8 year old daughter and a Ceritified Nurse-Midwife.  I had a pituitary microadenoma and it was removed via TSA nov, 2003.  I had remission until 2006.

I knew I was getting sick again but my labs were inconclusive for many months.  I had reduced my work hours and still too fatigued to work safely.

In August of 2006 I went to my primary care doctor and told her I was also having a great deal of trouble with my memory such as remembering medications that I gave all the time and even remembering how to look them up.  I stopped working that day.

I had 1/2 pituitary removed in November 2006 with no remisssion.  I researched options and got other opinions NIH, and Mass General and everyone agreed on radiation…the BIG dose ond day kind.  Remission achieved a few months later.

I am still in remission currently, but not who I used to be.  Still requiring naps a couple of times a day and to bed early .  I have a lot of trouble concentrating, so I can’t drive more than 30 minutes or as my friend says, “my inner canine comes out” and I start staring out the window…kind of forgetting i’m driving.  It’s funny but not really.  what a wild ride this has been.

It is easy to feel like the only one with this disease, I’m glad you all are here to make it a friendlier place.

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