Hi, I’m Cat and I have a 17 year old daughter who may have Cushing’s. I am aggressively seeking help for my girl.
We are on doctor #3 and have hit another wall w/ this one too. My daughter has several physical manifestations of Cushing’s, as well as two episodes of hypercortisolism confirmed on labwork. However, my daughter’s obvious symptoms are being quickly brushed off.
I need major support in how to navigate this hellish ride and I am seeking guidance in finding a Cushing’s specialist who will either rule in or rule out a diagnosis of Cushing’s in my girl.
thank you
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Nov 13, 2013 @ 21:00:38
Where do you live?
Nov 13, 2013 @ 21:13:46
Most folks were told that their symptoms were of something else—’cause Cushings is “rare”. Try not to get discouraged—sounds like you’ve got some indicative tests results (of course they could dismiss those too if they’re intent on it not being Cushings)—keep up the good work and stay connected with supportive folks.
Hugs.