I was diagnosed in June 2012 with Cushing’s Disease after almost three years of a variety of illnesses.
My husband and 8 year son have seen me through a brain surgery and its failure, permanent DI, removal of my adrenal glands, a hernia surgery, a severe hip fracture, four additional hospital stays including 10 ER visits.
I used humor to get me through these past couple years (and prayer). I needed to laugh as I gained 81 pounds (while doing a sprint Tri, running a 10k, and working out when I wasn’t on crutches), having hairy arms, a hump on your back and so much more.
I have been lucky enough to continue to work and am blessed with a supportive family and friends. I hate this disease for so many reasons but I am not going to give in to it.
I feel very lucky that someone directed me to this site and I am grateful for the opportunity to not feel alone on this journey.
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Nov 15, 2015 @ 10:05:10
I too had cushings I was diagnosed in March 2013 I had surgery in June 2013 to remove a tumor from my pitituary gland. People don’t understand what it’s like to have the disease and live with it even though they say you are cured after surgery you live the effects everyday there is no cure for this horrible disease.
I wish you all the best
Denise Harney
May 09, 2016 @ 21:59:18
,Hello Denise.
I too am a ”cured” cushie, Adenalectomy 9/2013 with all the side effects still going on with no medical professional linking my cushings to my medical problems.
I have never met or talked to a cushie.
Chris Mattern