A Golden Oldie
After 2.5 yrs of testing, I was diagnosed with Cushing’s (which was un-diagnosed for over 20 yrs). My Pituitary Tumor was removed on 10/20/11.
My surgeon has recommended Radiation/Gamma Knife treatment which will be discussed at my post srgery checkup 1/10/12. I also have noduals on both my adrenals.
Other symptoms: obesity, diabetes, high blood pressure, high cholesterol, muscle weakness, sleep apnea, fatigue and depression.
Susan submitted a second version of her bio.
My testing -> diagnosis -> surgery journey took 2.5 years. I have always had a weight problem. All my Doctors ever asked if I was interested in a liquid diet, liposuction, gastro bypass or go to Weight Watchers, and eat less. But when I reached 375 lbs I knew something had to be done. Things were way out of control. I could no longer handle this by myself, I needed HELP.
I had seen comercials on TV which talked about excess Cortisol leading to excess belly fat . So, I asked my Primary Care Doctor if she could test my Cortisol level. She just laughed and said I would have to go to an Endocrinologist (Endo). She did not even provide a referral. Through my insurance company I found an Endo. On 7/3/09, my first appointment with the Endo, she agreed to test me but felt I just had a fatty liver.
When the test results came back, they showing excess Cortisol. This started a series of saliva, blood test, 24 hr urine, MRI, and CAT Scan tests. Then I was referred to another Endo Dr Findling in WI (I live in IL) for another opinion and the IPSS test.. (Dr Findling said I looked like I had Cushings for over 10 yrs.) This was followed by Ostrascam and PET Scan. Armed with the diagnosis of Cushing’s Disease we were off to get a surgeon. The first doctor I seen in IL was a bust. Then I was referred to Dr Oldfield in VA, who performed my surgery on 10/20/11.
Now in recovery, I still get weak, tired and sleep a lot. I have been using a walker and cane to get around. Interesting to see that other Cushings also have problems with mobility, aches and pains. I hope this gets better. I have follow-up appointment 12/21/11 and 1/11/12 with the Endo and surgeon. I am off my High Blood Pressure and 2 of the 3 Diabetes meds. I have lost 30 lbs in the 7 wks since surgery. I can;t wait, 1 more wk before I can start swimming again.
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