A Golden Oldie
The doctor is suspecting that I have cushings. Going through all the testing now.
Cortisol levels still high at one time they were 120. My endo is referring me to a specialist at Vanderbilt, TN.
Update November 6, 2011:
Hello my name is Kery! I am 32 years old. I live in Kentucky. I have been married for 6 years to a wonderful man named Preston. We have two beautiful daughters, Kamryn 8 and Kylee 6. We have a little 2 pound yorkie named Tucker and a mini donkey named Henry.
I had an MRI 1 1/2 ago and about 4 months ago both times it showed that my pituitary was enlarged. The neuro said no brain tumor no need to operate go see an endo and walked out of the room. So I did. He ordered tons of labs. I have had three test come back high for cortisol. My endo is suspecting cushing.
I go back to see him on November 14 and I have an appt in Vanderbilt TN with the pituitary director Dec 20. Really wished that I could get in sooner, I am so tired of feeling bad everyday.
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Sep 15, 2013 @ 19:33:32
Kery, my heart goes out to you. I know and understand well how you feel. I’ve been living with cushing’s now for a year and it’s not the most fun I’ve had. Big stomach, thin arms and legs, terribly bruised forearms and chest, moon face and very, very tired. No engery, no will or desire to do anything, I get sick of being sick. I see my endo every 3 months but nothing ever seems to change, he never seems to do anything different. I’m in his office for a total of about 5 minutes. He does do 24-hour urine collection and blood labs prior to each visit but other than that, zippo. I get the feeling that he doesn’t always understand what I’m trying to explain to him about how I feel as he never gives me any suggestions or tries anything new. Unfortunately, he is the ONLY endo for miles and miles and miles around.
Please know my thoughts are with you and that I understand what you are going through.
Cheers,
Louise
Ontario, Canada