Another Golden Oldie
Doctor says I do have Cushings, but just still looking for the originating site. Cortisol level twice the upper limit of normal.
Had symptoms for YEARS, but no one pulled it all together until this summer I had TWO Spontaneous foot fractures. Had houseguests at the time, both German doctors. The husband handed me a list of tests before he returned to Germany and said “I think you have Cushings, have your doctor run these tests”.
Saliva test positive, 24 hr urine positive, MRI showed small tumor. Endocrinologist says that the jury is still out – 20% of population has pituitary tumor with no problems. Had the dex test last week. Sounds like everyone has the same feelings as I do – please find something and let me put my life back together. My body is disintegrating!
For those of you who have been through this and had surgery, how do they regulate your hormones after the surgery. Were you able to back to work right away? How quickly did you lose the extra weight. (I have gained 40 lbs in the last year). Please help!
Sep 14, 2013 @ 10:17:59
Deva Andrews Judy, I am sorry it took so long to diagnosis you. It took 15 years, 5 doctors and I diagnosis ed myself. After your surgery you will be given possibly Prednisone, I was. The weaning process took me 18 months. This is CRITICAL, do not let your endocrinologist take you off quickly. Your counts will show normal, but your body has to adjust. My recovery was difficult, and I am sorry to say but I spent months sick to my stomach. Your weight will fall off, but it will take awhile. Eat small meals to try to keep the nausea down, just like if you were pregnant. The strength in my legs took about 2 years to become strong again, and the dementia starting clearing within a few months. I’ll be praying for you, and feel free to contact me.